My treatment is a pain in the butt!


This header is a bit ‘tongue in cheek’ (….did you see what I did there?)  I’m very happy to have this treatment every 4 weeks – I can think of far worse scenarios.  When I was first diagnosed, the dreaded word ‘Chemo‘ was discussed.  Actually, Chemo isn’t particularly effective in treating Neuroendocrine Cancer, although I’ve heard of cases where it has made a difference.

Today’s letter is ‘L’ and there are a few.


This is currently my mainstay treatment and I look forward to it once every 4 weeks.  It is injected ‘deep subcutaneous’ in the upper outer quadrant of the buttock.

Prior to my diagnosis, I was a tad squeamish when it came to injections, even the smallest would make me cringe and I couldn’t bear to watch any needle pierce my flesh! Nowadays, as a daily self injector (see earlier blogs), I no longer have a fear of injections. However, the Lanreotide is the biggest injection I’ve ever had.  It’s not so much the length but the bore as the drug has a certain viscosity.  

The main job of the drug is to inhibit the secretion of dangerous levels of specific hormones from the remaining neuroendocrine tumours, wherever they might be, whatever size they are.   For more detail on this see ‘Does my flush beat yours’ published on 6 May 14. 

Is it a pain in the butt?  Not really, you can feel it go in and you can feel the release of the drug but nothing to worry about.

Check out my experiences with Lanreotide here.  Check out the differences between Lanreotide and Octreotide here.


One of the main sites for secondary tumours in many cancers is the Liver and this is the case with many types of Neuroendocrine Cancer – if the cancer cells pass into the bloodstream, the liver is a likely place for them to settle. Your liver is the hardest working organ in your body—it acts as a filter, picking up and then removing the toxins from your body and keeping your internal organs running smoothly.  If it isn’t working properly, you’re in trouble.   Fortunately, liver surgery is an effectively way to debulk NETs

Lymph Nodes

Everybody has hundreds of small oval bodies that contain lymph.  Lymph nodes act as our first line of defence against infections and cancer.  Unfortunately with cancer, they very often need to be removed to prevent it spreading further.  I have had a few naughty ones removed including a chain of bulky ones from my abdominal mesentery and over a dozen from my left armpit and collar-bone areas.  


Thanks for reading


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Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!





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