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  • About
    • Home
    • My Diagnosis and Treatment
    • Recommendations
    • Disclaimer
    • Patient Support Group
  • COVID-19 Crisis
    • I will take the vaccine, no question
    • Coronavirus 19 (COVID-19): risks for cancer patients
    • COVID-19 and Cancer Treatment and Surveillance
    • Why Coronavirus Anxiety is Hard to Control – a Neuroendocrine Cancer patient perspective
    • My Self Isolation Diary – COVID-19
  • Epidemiology
    • Neuroendocrine Neoplasms – not as rare as you think
    • The Invisible NET Patient Population 
  • Diagnosis
    • 10 questions to ask your doctor
    • Where to find a NET Specialist worldwide
    • Neuroendocrine Neoplasms – Grade and Stage (incorporating WHO 2019 changes)
    • Marker Tests
      • Tumour markers and Hormone Levels
    • Imaging
      • Scans for Neuroendocrine Cancer
      • Gallium 68 PET Scans – Into the Unknown
      • Ga68 PET Scan – a game changer?
    • A needle in a haystack?
    • Diagnosing the Undiagnosed
  • Syndromes
    • The Syndromes of Neuroendocrine Cancer – Early Signs of a Late Diagnosis
    • Hormones
    • Serotonin – the NET effect
    • Neuroendocrine Cancer: A Witch’s Brew
  • Treatments
    • Surgery
      • Surgery for Neuroendocrine Neoplasms – to cut or not to cut?
      • My Neuroendocrine Cancer Surgery – Small Intestine NET, a patient experience (part 1)
      • My Neuroendocrine Cancer Surgery – a patient experience (part 2)
      • Small intestine, large surgery
      • My liver rescetion
      • My lymphadenectomy
      • Surgery is risky but so is driving a car
      • Surgery for NETs – Chop Chop
    • Liver Embolization (bland, chemo, radio)
    • Somatostatin Receptors
    • Somatostatin Analogues
      • Lanreotide: Ten more years please!
      • Lanreotide vs Octreotide
      • Lanreotide – it’s calling the shots!
      • At home with Lanreotide (….and Octreotide)
      • Somatostatin Analogues and delivery methods in the pipeline
    • Peptide Receptor Radionuclide Therapy (PRRT)
    • Everolimus (Afinitor)
    • Sunitinib (Sutent)
    • Chemotherapy
    • Telotristat Ethyl (XERMELO®)
  • Diet & Nutrition
    • Article 1 – Vitamin and Mineral Challenges
    • Article 2 – Gastrointestinal Malabsorption
    • Article 3 – Gut Health
    • Article 4 – Food for Thought?
    • Article 5 – Pancreatic Enzyme Replacement Therapy (PERT)
    • Article 6 – featuring the 2020 video series by Tara Whyand RD
  • Clinical Trials
  • Award Winning Blog
  • The A to Z of Neuroendocrine Cancer
  • Patient Support Group

Year: 2015

Neuroendocrine Cancer – a Doctor’s experience

March 18, 2017
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Not all cancers are black, white, blue, pink – some are very grey

October 22, 2020
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Lanreotide – it’s calling the shots!

December 10, 2020
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Neuroendocrine Cancer Survivor Wilko Johnson – from dying to living. Rock and Roll!

October 28, 2020
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My Neuroendocrine Cancer Surgery – a patient experience (part 2)

December 8, 2020
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Neuroendocrine Cancer Surgery – Small Intestine NET, a patient experience (part 1)

December 8, 2020
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Neuroendocrine Cancer – the devil is in the detail

March 28, 2019
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Neuroendocrine Cancer – a difficult jigsaw

January 10, 2021
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Neuroendocrine Neoplasms – Grade and Stage (incorporating WHO 2019 changes)

January 5, 2021
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Your Money or Your Life

September 19, 2017
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Scanxiety – I just don’t get it!

July 11, 2018
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Not all Cancer is simple

October 15, 2015
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Other people get cancer, not me

July 24, 2020
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I bet my flush beats yours?

November 5, 2020
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Opinion: Let’s attack Cancer metaphors

November 14, 2020
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Opinion: Neuroendocrine Cancer Awareness – let’s move into the 21st century

October 11, 2020
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PRRT and the NHS England Cancer Drugs Fund (now archived information)

December 7, 2020
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Screw that diagnosis and get on with it!

December 12, 2016
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Neuroendocrine Cancer Nutrition Series Article 3 – Gut Health

April 20, 2020
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Neuroendocrine…..the little suckers get everywhere!

January 24, 2020
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I look well but you should see my insides

December 8, 2020
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The Syndromes of Neuroendocrine Cancer – Early Signs of a Late Diagnosis

November 27, 2020
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‘Chinese Dumplings’ and Neuroendocrine Cancer

November 23, 2019
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I’m still here

December 8, 2020
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Sorry, I’m not in service

April 25, 2019
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Neuroendocrine Cancer Nutrition Series Article 2 – Gastrointestinal Malabsorption

December 13, 2020
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Neuroendocrine Neoplasms – not as rare as you think

January 19, 2021
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Neuroendocrine Cancer Nutrition Series Article 1 – Vitamin and Mineral Challenges

November 27, 2020
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Surgery is risky but so is driving a car

October 21, 2019
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I may be stable but I still need support and surveillance

November 6, 2020
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Neuroendocrine Cancer Forums: frighteningly good or good at frightening?

April 23, 2020
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Neuroendocrine Cancer – don’t break my heart!

December 8, 2020
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Please flush after use!

August 12, 2018
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Chasing normality

November 2, 2017
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The C Word

May 8, 2015
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Neuroendocrine – what’s that?

February 24, 2019
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The trouble with the NET (Part 2) – Alternative Therapies – what’s the harm?

June 25, 2020
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Chemotherapy for Neuroendocrine Cancer

January 6, 2021
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Carcinoid vs Neuroendocrine

October 19, 2020
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Cancer doesn’t take holidays (but I do)

September 14, 2019
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No Fear

January 14, 2021
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The trouble with the ‘NET’ – Part 1 – Cancer Myths

August 11, 2020
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Exercise is Medicine

March 14, 2016
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Things are not always how they seem

March 1, 2020
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Do you suffer from NET Brain?

April 21, 2020
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Surgery for NETs – Chop Chop

December 22, 2020
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Colonoscopy Comedy

July 9, 2020
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Turning a negative into a postive

February 16, 2015
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Lanreotide – Four more years

December 8, 2020
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Intelligent patients – just what the doctor didn’t order

May 13, 2016
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Disobedient Objects

December 2, 2015
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Well done NHS!

March 27, 2020
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The Mother of all Surgeries

October 2, 2019
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