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I’ve mentioned ‘luck’ a few times in the past month following some more ‘cancerversary’ milestones – these tend to make me reflect on my experience. Even though I was metastatic at diagnosis, I think of myself as lucky on the basis that my tumours were found by ‘chance’, or to be more accurate, found following an innocuous set of circumstances. Click here to hear me talk about my diagnosis.
As we know, Neuroendocrine Cancer can sometimes be very difficult to discover and diagnose. However, sometimes with a bit of luck or a chance event, it can be intercepted and can then often lead to a much better outlook for the person concerned. But sometimes there is also a cost, and I don’t just mean financial (although that is also a very real problem). Despite me thinking I had been lucky, the ‘little suckers‘ had burrowed their way into many places, and I now deal with those consequences following significant treatment to get rid of as many as possible.
With my blogging and advocate activity, I get to hear other people’s stories, some of which have tweaked my emotions from ‘man style leaky eyes’ to wide-eyed surprise and astonishment, but very occasionally with smiles. I had one such exchange with Mary who subsequently agreed to let me use her story which immediately caught my eye because it not only triggered a wide range of emotions but made me reflect on the cost aspect I described above.
Mary’s is a lung NET patient, and her tumour was caught early. Although it was a totally chance discovery, it was in really unfortunate circumstances. Her brother Dan was fighting leukaemia and needed a lifesaving stem cell transplant. During the checks for her suitability as a donor, the lung NET was discovered. Clearly a very worrying time for Mary as she had gone to the hospital to try to save her brother’s life and ended up being admitted with her own cancer diagnosis and was therefore unable to take any part in the donation. I cannot begin to imagine how that felt for the whole family. Fortunately, Mary’s sister was also found suitable and was able to donate. Their brother later had a successful transplant but unfortunately his cancer recurred, and he passed away a short while later.
That’s an amazing albeit sad story but it invokes a wide range of emotions. It’s also a very inspiring story about a family coming together in time of crisis. Mary went to hospital that day to try to save Dan’s life and despite her own diagnosis, she still felt guilty that she was unable to fulfil that task. However, before his passing, Dan let it be known that he must have gotten sick to save her life. That’s a heart-warming thought – RIP Dan.
I’m very thankful to Mary who agreed to let me publish her story here.
I’m very thankful to Mary who agreed to let me publish her story here. It was actually featured in their local newspaper – you can read it here – Click here
I’d love to hear from others who had a lucky or chance tumour find.
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I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Digestive Neuroendocrine Carcinoma
This ENETS guidance paper, developed by a multidisciplinary working group, provides up-to-date and practical advice on the diagnosis and management of digestive neuroendocrine carcinoma, based
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for gastric neuroendocrine tumours (NETs) G1–G3
The ENETS 2023 guideline for gNETs are combined with the guidelines for Duodenal NET (dNET) due to their close relationship in anatomical terms. Gastric neuroendocrine
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Duodenal neuroendocrine tumours (NETs) G1–G3
The ENETS 2023 guideline for dNETs are combined with the guidelines for Gastric NET (gNET) due to their close relationship in anatomical terms. But there
D Day I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea
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A cup of tea
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