I recently posted an ‘Onc Live’ video series about Neuroendocrine Tumour (NET) treatments and the final episode talked about combination treatments i.e. where more than one treatment is administered simultaneously. An interesting and exciting area to watch for the treatment of NET patients.
Thought you’d be interested in a potential new treatment being developed in Australia. The use of PRRT and chemo (in particular CAPTEM) or ‘PRCRT’. The attached video is a presentation by Dr Michael Hofman who I see regularly on twitter posting some very interesting stuff. He’s a great advocate for NET patients. The video will explain in some detail how the treatment is thought to work together. Additionally, it also provides excellent PRRT information. Dr Hofman has some really interesting things to say. 20 minutes – definitely recommended watching! CLICK HERE
I’d been planning to provide you with this post for a few weeks but was prompted to release early today by an announcement from Unicorn Foundation confirming recruiting is open for a trial named ‘CONTROLNETS’ involving PRRT and CAPTEM. The details of the trial can be read here: CLICK HERE
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Most people with an incurable Cancer will go through both good and bad periods. I quite liked a quote by a fellow patient who described that as the ‘ebb and flow’ of living with cancer and said the flow would always return at some point. I also liked a quote from a fellow blogger whose blog catchphrase is “Having a bad day shouldn’t mean having a bad life”.
When I wrote my blog “Living with Neuroendocrine Cancer – it takes guts“, that wasn’t me being one of those trendy bloggers saying the sort of things people want to hear. Nor was it an attempt to invoke some sort of ‘pity party’. Neither of those things are my style. Despite the metaphoric angle to the post title, it really does take guts to live with a life threatening condition.
Despite my positive sounding blogs and my generally focused and determined nature, I’ve had bad periods where I felt I wasn’t coping to well living with cancer. I’ve lost count of the number of times I’d planned to do something and then put if off for various reasons. It’s really easy to become almost permanently inactive and lethargic and that is not a good outcome.
‘It’s the cancer’ – this can sometimes seem like the perfect reason to say ‘I can’t. It’s difficult but I find it helps if you have someone providing motivation, a partner, a friend or just by reading an inspiring post. I’m perked up when I read stories about patients trying to change or improve their outcome, even simple day-to-day things.
Sometimes there is a fine line between ‘poker face’ and ‘cancer card’.
And sometimes it’s not even about the cancer!
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