08Jun 2016 by Ronny Allan 2 Comments

Ronny Allan

Award winning Neuroendocrine Cancer Patient Advocate. Diagnosed with Metastatic Neuroendocrine Cancer in 2010.

Reviewed and updated 28th September 2021

OPINION:
One of the key aims of my blog is to create more awareness of Neuroendocrine Cancer, its peculiarities, its effects, its ability to deceive, its ability to kill if left undetected and/or untreated; and its impact on Quality of Life (QoL). There are millions of people out there doing similar with thousands of other conditions. That means even to stand out a little, messages must be compelling, must attract attention; and must catch people’s interest. Unfortunately, many campaigns I see are outdated, based on flawed themes from the 1980s and as a consequence, awareness of Neuroendocrine Cancer stands still.

In the last 72 months, I’ve generated a few ‘different’ awareness campaigns, some of which have been more successful than others and I learn from this. Fortunately, I’ve had significant help from YOU because if you did not share my posts and blogs, they would not have the potential reach they currently do and would not, therefore, attract the new audiences I’m looking for (….and finding!). The same applies to Facebook, twitter and other parts of the social media universe. I thank you all for the help to date. However, the job is far from finished!

My main campaigns are listed here so please help yourself to the ones you like and feel free to support or sponsor. Please note there are social media sharing buttons at the bottom of each post – or just simple cut and paste as required.

The 9 posts above comprise around 20% of my total blog hits and these are the ones which are attracting new audiences who now know about Neuroendocrine Cancer and are telling others. Please help me build on this.

Neuroendocrine Cancer would love you to ignore this post. This is a reverse psychology message which is designed to attract attention – and it does! It is currently one of the most tweeted posts in the history of Neuroendocrine Cancer awareness. If you’re on twitter, please retweet the original post (quoting it in a new post is also great but please also retweet the original). The tweet can be found by clicking here. It’s also a great awareness post for any type of social media so please share as it gives a really simple and yet compelling awareness message about the danger of Neuroendocrine Cancer and ignoring symptoms, including after diagnosis. Click here then share.

Living with Neuroendocrine Cancer – it takes guts! This is a powerful message which lets people know what effects the consequences of Neuroendocrine Cancer and its treatment have on people’s lives. It’s not a pity party – I don’t do those (as you well know).

I also emphasise that it’s not all about diagnostic difficulties (as important as that might be), more focus needs to be placed on LIVING with Neuroendocrine Cancer given that it is a highly prevalent cancer, and no longer rare.

The diagnostic angle was relevant 10 years ago, but the focus needs to become much wider thus why the community needs to shift from the ‘same old same old’ to a ‘different new’. This post has attracted much interest from new audiences in the wider healthcare world. Read and share it by clicking here

Neuroendocrine Cancer – ssh! Can you hear it? This is the ‘silent’ theme and attracts a lot of support. This really drives home the devious nature of Neuroendocrine Cancer, the fact that it can be a very silent until it’s too late and the difficulties that it presents with accurate diagnoses and subsequent ongoing monitoring. The post can be found by clicking here

Neuroendocrine Cancer Syndromes – Early Signs of a Late Diagnosis

This is an awareness message to emphasize that there are a number of different syndromes involved in NETs in different parts of the body and that terminology and understanding is important to get the awareness messages right. Click here.

Every day is World NET Day. This post has had the largest number of 5 star ratings input by readers indicating support for my awareness strategy. Don’t get me wrong, 10 Nov is special but the other 364 days also present awareness opportunities. You can read this blog by clicking here. You can also register for my World NET Day Social Media Event leading up to 10 Nov by clicking here and select ‘Going’ (then invite others please). On this event, Every Day is World NET Day! Note I use ‘World NET Day’ because ‘NET Cancer’ is pretty much wrong for two reasons, firstly there’s no such term as “NET Cancer” and secondly the decode “Neuroendocrine Tumour Cancer” is not only excluding Neuroendocrine Carcinomas from awareness but it’s also very bad grammar.

Let’s raise our ‘sites’ which I changed to The Dissection of Neuroendocrine Cancer. This awareness message also emphasizes the anatomy of Neuroendocrine Cancer and the importance of the correct terminology in order to get the optimum and accurate awareness messages over. I’m using the word ‘sites’ as a take on ‘sights’ – someone picked me up for spelling last time I posted! Click here to read.

Neuroendocrine Cancer: Normally Slow but Always Sneaky. Very powerful message, scary but designed for external audiences. My most read article with over 50,000 views since published. This post should be framed and put on the desk of every general practitioner in the world.

Neuroendocrine Cancer is NOT a ‘type’ of another cancer …. PERIOD. The anatomy of cancer works against us so we need to really drive this message home. We lose a lot of publicity, resources, supporters and potential funding because of this misunderstanding. This post should be framed and put on the desks of every person recording a cancer.

Neuroendocrine Cancer can be silent but we shouldn’t be!

If on twitter, please retweet this tweet

#NeuroendocrineCancer would love you to ignore this post. Don't let it win so please RT. https://t.co/sMbDDexdr3 via @RonnyAllan1
— Ronny Allan 💙 (@RonnyAllan1) March 3, 2016