Month: March 2018

16Mar 2018 by Ronny Allan 5 Comments

RIP Irrfan Khan

Awareness

BREAKING NEWS - Irrfan Khan died in Mumbai India 29 Apr 2020 after being admitted to hospital for a "colon infection". More to follow when known. ORIGINAL POST FOLLOWS...….. Irrfan Khan, Indian actor and producer, well-known for movies, Slumdog Millionaire, Life of Pi, Jurassic World, The Amazing Spider-Man, was diagnosed with Neuroendocrine Cancer in 2018. What type of NET? Irrfan released information on 19 June 2018 indicating it was a high grade Neuroendocrine Cancer - although there is no detail of the 'differentiation' that would indicate a 'Neuroendocrine Tumour' (NET) or a 'Neuroendocrine Carcinoma' (NEC). There have been no confirmed reports about the primary location. Read his "Note from London" here Where is he being treated? Irrfan initially said he would be travelling "overseas" for treatment. Fox News (USA) said…

05Mar 2018 by Ronny Allan 4 Comments

RonnyAllan.NET – Community Newsletter February 2018

Awareness, Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship

Another great start to the year in both NETs in the news and my social media activity. It's been really cold where I am though! I'm so busy with personal contacts, I decided to set up a chat room so that other people can help me answer some really difficult questions! This 'chat rom' is not designed to run like a traditional Facebook forum, it's a place to make people feel safe and to discuss without the usual distractions and dramas that people often encounter. And .... it's about learning. I welcome all types of NET, people from any country and I also welcome carers/caregivers and medical people (I already have a few of the latter). It's also a place where I will bring in expertise to chat about various…

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email Overview Many thanks for the support in February both on public pages and in my group – in fact the group’s statistics are totally booming – that is helping a lot of people. My public […]

Opinion: On Rare Disease Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email On Rare Disease Day, what’s wrong with a bit of Neuroendocrine Cancer awareness? Well, there are three main things wrong with Neuroendocrine Cancer awareness: 1. The incidence and prevalence of Neuroendocrine Neoplasms (the combination of […]

My treatment is a pain in the butt!

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email The post header is a bit ‘tongue in cheek’ (…. did you see what I did there?) I’m very happy to have this treatment every 4 weeks – I can think of far worse scenarios. […]

Ronny Allan – Top 10 for 2020 – Neuroendocrine Cancer

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email 2020 was a different year due to the pandemic and it has spilled over into 2021 – this has had the effect of being slightly down on the 2019 figures. I also changed tack on […]

Neuroendocrine Cancer: Follow up tests and checks

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email Since 2010 I’ve had a lot of surveillance and testing. More than ordinary people can imagine. I can see from various comments on my public pages and posts within my private group, that some people […]