Month: March 2018

16Mar 2018 by Ronny Allan 5 Comments

RIP Irrfan Khan

Awareness

BREAKING NEWS - Irrfan Khan died in Mumbai India 29 Apr 2020 after being admitted to hospital for a "colon infection". More to follow when known. ORIGINAL POST FOLLOWS...….. Irrfan Khan, Indian actor and producer, well-known for movies, Slumdog Millionaire, Life of Pi, Jurassic World, The Amazing Spider-Man, was diagnosed with Neuroendocrine Cancer in 2018. What type of NET? Irrfan released information on 19 June 2018 indicating it was a high grade Neuroendocrine Cancer - although there is no detail of the 'differentiation' that would indicate a 'Neuroendocrine Tumour' (NET) or a 'Neuroendocrine Carcinoma' (NEC). There have been no confirmed reports about the primary location. Read his "Note from London" here Where is he being treated? Irrfan initially said he would be travelling "overseas" for treatment. Fox News (USA) said…

05Mar 2018 by Ronny Allan 4 Comments

RonnyAllan.NET – Community Newsletter February 2018

Awareness, Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship

Another great start to the year in both NETs in the news and my social media activity. It's been really cold where I am though! I'm so busy with personal contacts, I decided to set up a chat room so that other people can help me answer some really difficult questions! This 'chat rom' is not designed to run like a traditional Facebook forum, it's a place to make people feel safe and to discuss without the usual distractions and dramas that people often encounter. And .... it's about learning. I welcome all types of NET, people from any country and I also welcome carers/caregivers and medical people (I already have a few of the latter). It's also a place where I will bring in expertise to chat about various…

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email Newsletters have returned! I ceased publication of monthly newsletters over a year ago, mainly because they were time consuming to compile and the impact was less then my average post in terms of feedback. However, […]

SSTR PET – Ga68-DOTA-JR11 vs Ga68-DOTATATE

Headline – 68Ga-DOTA-JR11 was found to detect significantly more liver lesions than 68Ga-DOTATATE; however, 68Ga-DOTATATE detected more bone lesions than 68Ga-DOTA-JR11. Although it had been in trial use for some years in Europe and elsewhere, the formal approval of 68Ga-DOTATATE has led to an increase in the development of other radionuclides, some in conjunction with therapeutic […]

Living with Neuroendocrine Cancer during COVID-19 restrictions 11 – a story of Walking the Wall, coping strategies and the London Ga68 PET

Episode 11 of my Living under COVID-19 series. A story of the Walking the Wall, coping strategies and the London Ga68 PET 30th May 2020 Still recovering from the long walk …. if you missed it it’s here. We have another 3 or 4 days of hot weather so it’s bikes again soon. 🚲🚲 Today […]

Targeted Therapy for Neuroendocrine Cancer – Sunitinib (Sutent)

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email Click here to see the A to Z of Neuroendocrine Cancer What is Sunitinib (Sutent)? Manufactured by Pfizer, this is a targeted biological therapy or more accurately, a multitargeted tyrosine kinase inhibitor (TKI). You may […]

Targeted Therapy for Neuroendocrine Cancer – Everolimus (Afinitor)

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email Click picture to read the A to Z of Neuroendocrine Cancer What is Everolimus (Afinitor)? Manufactured by Novartis, this is a targeted biological therapy or more accurately, a mammalian Target of Rapamycin (mTOR) inhibitor. It […]