Living with Neuroendocrine Cancer – HALF A MILLION views

I am totally astonished to have been able to accumulate 500,000 (half a million) views of my blog. When I first set it up in Apr 2014, it was just to help spread awareness whilst I was walking the 84 miles of Hadrian’s Wall with my wife Chris. I never for thought for one minute I would still be doing it today and accumulate over 11,000 followers across all my social media sites, from all over the world.

Can’t stop, won’t stop. Onwards to 1 million views for Neuroendocrine Cancer awareness.

My key aims are international level awareness, advocacy, campaigning, and support for NET patients via all my social media accounts. I realise I’m not your regular NET advocate and I do things differently. However, I’m fairly certain that has played a part in getting to this stage.

My main sites are here:

Blog – ronnyallan.NET – 500,000 blog views as at 7 March 2018. Click here.

Twitter – @ronnyallan1 and @netcancerblog

Facebook – I have numerous accounts:

NET Cancer Blog (my main site with around 6000 as at March 2018) – click here and ‘Like’
Ronny Allan – additional output – click here and ‘Like’

Newsletter – extending the reach into wider areas via a daily newsletter from twitter and other sources. click here to subscribe.

Instagram – click here to follow

Many of you who read this will already be on these sites so please ‘Follow’ or ‘Like’ as appropriate – be careful you don’t ‘Unfollow’ or ‘Unlike’.

There are so many other sources of routes into my blog and I’m grateful to the many patient advocate organisations, patient advocates, the healthcare community in general and many, many, more. If you’re reading this, thank you so much.

Please note:
All information provided on this Facebook page or any of my social media accounts does not constitute professional medical advice. See my disclaimer here: DISCLAIMER

Message me here: http://m.me/NETCancerBlog

I also have a private Facebook group, let me know if you’re interested.

Thanks for reading

Ronny

I’m also active on Facebook. Like my page for even more news. I’m also building up this site here: Ronny Allan

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Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!

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Author: Ronny Allan

Facebook: https://m.facebook.com/NETCancerBlog and https://m.facebook.com/RonnyAllanBlog twitter: @ronnyallan1 twitter: @netcancerblog

13 thoughts on “Living with Neuroendocrine Cancer – HALF A MILLION views”

  1. Hi Ronny, lm just reaching out – in a predicament over my husbands treatment plan. He had a pet scan and bloods taken in January, it was given the all clear to have PRRT. His recent blood tests show low platelets, but rising. It was suggested that the pet scan was responsible. They have now said that actually, due to the amount of cancer he has in his liver, they are reluctant to give any PRRT. Surgery is now being discussed, which has been ruled out in the past 3 years as being too risky. We have lots of specialists discussing us at the moment. He has had streptazocin and everolimus, which he reacted very badly to. He had PRRT three years ago which really worked. He is healthier than he was back then. Our issue is that if the liver is operated on it is a three month recovery. What happen to the cancer in the pancreas and bones. It is very frustrating to say the least, because of the initial decision being changed.
    This is complicated, but l wanted to hear the thoughts of some one that understands.
    Many thanks
    Lisa

    1. sorry your hubby has had to go through all that, you too. This is a tough question. There is multiple treatments involved and sequencing adding to the platelets issues. As you said, it’s complicated. Lets take my own experience. My liver tumours were slightly more aggressive than my primary (small intestine). I had surgery with a very experienced liver surgeon, he took out 66% of my liver, it kinda grows back. I still have some tumour deposits. My Chromogranin A (tumour bulk) didn’t reduce until liver surgery (my primary was removed 4 months previously). I’ve never had PRRT but I do know it’s a good treatment and works for most. I still don’t understand some of the intricacies of it though, in terms of risks, except I know renal issues can be. I’m guessing he’s Grade 1or 2 ?

  2. I very much appreciate what you do, Ronny. We have reposted some of your stories on our new PRRT SEATTLE Facebook page. We are trying to get the word out to patients that PRRT is available now for our disease. I am the first person in Washington State to get PRRT. Am currently half way through my treatment. Keep on getting the word out there!

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