Let’s Talk About NETs (#LetsTalkAboutNETs)

Talking to Ipsen 2016

Some of my talks

I do a lot of writing about NETs but I guess I’ve also done some talking too.  Some of these talks to patient groups and healthcare professionals were recorded and I have access to those recordings.  Others were either not recorded or I don’t have access to them for various reasons.  I’ll list some of them below for your perusal.

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I was invited by Ipsen to help produce some videos for a website they were building – it’s called “Living with NETs” and I also helped them, along with other patients, with the requirements for the content.  The video below was my patient story but there were around a dozen videos featuring myself in total.  

Not a video but a podcast, basically you get to listen to me without seeing me!  This was a special podcast after winning the 2016 WEGO Health Awards, Best in Show Community award.  Check it out!

I was invited to talk to the Middle East World NEN Lives Conference by my friend Mike Rosenberg.  The topic Mike gave me was “Living with NETs as a Chronic Disease”

I was invited to talk to the Neuroendocrine Cancer UK World NET Day Conference by their CEO Cathy Boulevard.  The topic I was asked to cover was “Becoming Your Own Expert“.  Have a listen. 

I’ll add more as time goes on. Thanks for viewing and listening. 

Thanks for reading.

Ronny


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Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!

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