I’m still here
I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea what the outcome would be. What I did know at the time, given the final staging, grading, and other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying.
Without intervention I may not be here now to tell you this tale and who knows what would be listed on my death certificate. It’s amazing to think something that would eventually kill me without intervention, didn’t have a much grander announcement than the one presented to me in 2010 (or had I been paying more attention, in 2008 or 2009). I will never know if a much grander announcement would have happened because following my chance diagnosis, I was ‘patched up’ and thankful to still be here today.
My “big surgery” took place on 9th November 2010. I say “big surgery” because I had two other surgeries, one of which could also be catergoised as major surgery.
Truthfully speaking, I did not expect to be here 12 years later, or at least that was my thinking at the time and for some years after that. The fact that I am must be related to the early intervention and radical surgery administered 2010-2012 and constant surveillance since. As a metastatic small intestine NET, debulking surgery is thought to be prognostically advantageous for many.
Accessing a specialist team is important early on, preferably before surgery as there are certain vagaries with Neuroendocrine Tumours (NET) which should at least be considered.
The surgical experience
I’ve written extensively about this but you can read it here:
A lot happened ……..
Check out my detaile clinical history from diagnosis on 26th July 2010:
I try to piss my cancer off!
I thought I was going to die …… I DID’NT
I’m still here
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional as they are not members of the private group or followers of my sites in any official capacity. Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
Subscribe to my newsletter
Top 10 Posts & Pages in the last 48 hours (auto updates)
Thanks for reading.
Sign up for my newsletters – Click Here
Check out my Glossary of Terms – click here
Please Share this post for Neuroendocrine Cancer awareness and to help another patient
This should be of interest, particularly to Canadians. (Not to be confused with 18F-FDG which is a different scan). For people waiting for imaging tests
Wilko playing at his last show. Oct 2022 in London. Aged 75. RIP Wilko Johnson – Neuroendocrine Cancer I have been following Wilko’s cancer story
Definitions – the differences between Hereditary vs Familial vs Genetic Disorders I wanted to start with these definitions because people may unintentionally use these three
I’m still here I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no