The Invisible NET Patient Population 

The Invisible NET Patient Population 

Awareness, Patient Advocacy, Survivorship, Uncategorized
OPINION   I found some of the quotes from the recent NET SEER Database study (Dasari et al) very interesting.  The National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program is a comprehensive source of population-based information initiated in 1973 that is updated annually. Although the study is US-based, it represents the largest study of Neuroendocrine Tumors (NETs) ever recorded and is therefore a good guide to what might be found beyond USA. In fact, other national declarations of incidence and prevalence of NETs seem to bear these statistics out, i.e incidence rates of 7-8/100,000 ...... almost 7 times the rate recorded in the 1970s. If you want to understand the factors behind this massive increase, I covered this extensively in my post "Neuroendocrine Tumors – not as rare as…
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Quick Thank You

Uncategorized
This isn't my daily blog article but a short note to say thanks to those who are reading via Twitter and Facebook plus new readers from other sources.  I was extremely pleased to see my record of daily views and likes smashed yesterday to an all time high. Additional thanks to those who are already sharing my message and I hope it has been useful to all readers in some way no matter how small. I've received several personal messages of support from friends, patients and relatives of patients.  If you like my blog, please feel free to share and recommend it widely and note I'm open to feedback so I can improve it going forward or just to get confirmation I've got it just right. Also I'm now international…
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