The 3 x Award-Winning Blog and Community by Ronny Allan – Living with Neuroendocrine Cancer

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Hi!

You’ve reached the website and blog of Ronny Allan.  Glad you found this page, as there is a mountain of information, all carefully researched where applicable.  This post is a list of your favourite posts as voted by you, the reader.  How do you vote?  Simple, you read posts that interest you, that pushes them up the league table over time.  If you really like a particular post, you can easily share it too.  

If your favourite post is not listed, just let me know, I’ll market it on your behalf. 

Keep reading

My home page explaining who I am in more detail can be found here:

…. and click the picture for my diagnostic and treatment summary
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As of March 31st, 2024. Shortcuts to my most read articles (over 5,000 views). Those listed individually have viewing counts over 20,000, the remainder is in a table (just keep scrolling) – click on the article title links on the left column to read, and please feel free to share. Does not include the home page which is currently running at almost 84,000 views.

Today – the following figure is the total number of views of my blog! Can you help me get to 3 million?
  • 2,424,917 views

What are the most-read blog posts in the last 48 hours?

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Did you know this is an award-winning blog? 

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Hey reader - you're an award winner too!
3 finals over 3 years, it was hard work winning this coveted award
Just getting started!
Appreciated by healthcare professionals
Truly humbled by this comment

Most read posts

Posts listed individually below have viewing counts over 20,000, just click the picture to read.  The remainder (5,000-19,999) are in a table where you need to click on the article title links on the left column to read.  Please feel free to share anything you want. 

Number 1 with almost 61,000 hits!
Number 2 with over 57,000 hits!
Number 3 with almost 50,000 views
Number 4 with over 46,000 views
Diagnosis and Treatment Ronny Allan
Number 5 with over 45,000
Number 7 with almost 34,000 hits
Number 8 with almost 32,000 hits
tumour markers and hormone levels
Number 11 with almost 32,000 hits
Number 12 with almost 29,000 hits
Number 13 with almost 27,000 hits
Number 14 with almost 27,000 hits
Number 15 with over 26,000 views
Number 16 with over 23,000 views
Number 17 with over 22,000 hits
Number 18 with over 22,000 hits
Number 19 with almost 21,000 hits
Number 20 with over 20,000 hits

Posts with 5000 to 20,000 views

Click on the URL to read the remaining popular articles.  You can also just Google e.g. “Ronny Allan surgery”, “Ronny Allan chemotherapy” or “Ronny Allan Lanreotide”, etc etc etc, to find your subject of interest.

TitleCountURL
Don’t believe the hype – Neuroendocrine Cancer Myths debunked19727https://ronnyallan.net/2017/04/06/dont-believe-the-hype-neuroendocrine-cancer-myths-debunked/
Serotonin – the NET effect18876https://ronnyallan.net/2016/09/08/serotonin-the-net-effect/
Aretha Franklin 1942-2018: Neuroendocrine Cancer18501https://ronnyallan.net/2018/08/16/aretha-franklin-1942-2018-neuroendocrine-cancer/
The 5 E’s (of Carcinoid Syndrome)18373https://ronnyallan.net/2016/05/25/the-5-es/
8 tips for conquering fear – Living with Neuroendocrine Cancer18163https://ronnyallan.net/2017/06/08/living-with-neuroendocrine-cancer-8-tips-for-conquering-fear/
Neuroendocrine Tumours (NET) – benign vs malignant17410https://ronnyallan.net/2024/03/16/neuroendocrine-tumours-benign-vs-malignant/
All you need to know about Somatostatin Receptor PET/CT Scans for Neuroendocrine Tumours17365https://ronnyallan.net/2018/05/31/gallium-pet-scans-into-the-unknown/
The A to Z of Neuroendocrine Cancer17127https://ronnyallan.net/the-a-to-z-of-neuroendocrine-cancer/
Carcinoid vs Neuroendocrine16687https://ronnyallan.net/2015/04/22/carcinoid-vs-neuroendocrine/
Currently trending on RonnyAllan.NET16167https://ronnyallan.net/2021/01/11/currently-trending-on-ronnyallan-net/
Neuroendocrine Cancer – If you can see it, you can detect it!15450https://ronnyallan.net/2016/11/05/neuroendocrine-cancer-if-you-can-see-it-you-can-detect-it/
Pancreatic Cancer vs Neuroendocrine Cancer of Pancreatic Origin14766https://ronnyallan.net/2018/11/15/pancreatic-cancer-vs-neuroendocrine-tumors-of-the-pancreas/
Neuroendocrine Neoplasms – not as rare as you think14611https://ronnyallan.net/2015/07/07/neuroendocrine-cancer-not-as-rare-as-you-think/
Ignore this post about Neuroendocrine Cancer14331https://ronnyallan.net/2016/01/26/neuroendocrine-cancer-doesnt-care-if-you-ignore-this-post/
Neuroendocrine Cancer Nutrition Series Part 4 – Amines: Food for Thought?14263https://ronnyallan.net/2016/08/02/neuroendocrine-cancer-nutrition-series-part-4-food-for-thought/
I look well but you should see my insides12910https://ronnyallan.net/2015/08/11/i-look-well-but-you-should-see-my-insides/
I bet my flush beats yours?12756https://ronnyallan.net/2015/10/05/i-bet-my-flush-beats-yours/
Neuroendocrine Cancer – the diarrhea jigsaw12281https://ronnyallan.net/2016/09/15/neuroendocrine-cancer-the-diarrhea-jigsaw/
Neuroendocrine Cancer – it takes guts11957https://ronnyallan.net/2016/04/15/living-with-neuroendocrine-cancer-it-takes-guts/
Targeted Alpha-emitter Therapy (TAT) – the wave of the future in nuclear oncology/PRRT?11887https://ronnyallan.net/2018/01/10/prrt-the-sequel-targeted-alpha-emitter-therapy-tat/
Chemotherapy for Neuroendocrine Cancer11624https://ronnyallan.net/2015/04/26/chemotherapy-for-neuroendocrine-cancer/
Neuroendocrine Cancer and Pancreatic Enzyme Replacement Therapy (PERT) – the Digested Version (Nutrition Series Article 5)11383https://ronnyallan.net/2018/01/11/neuroendocrine-cancer-and-pancreatic-enzyme-replacement-therapy-pert-the-digested-version-nutrition-series-article-5/
Ever wonder what caused your Neuroendocrine Cancer?11382https://ronnyallan.net/2017/09/28/ever-wondered-what-caused-your-net/
Surgery for Neuroendocrine Neoplasms – to cut or not to cut?11272https://ronnyallan.net/2017/01/14/neuroendocrine-cancer-to-cut-or-not-to-cut/
Rosacea – the NET Effect9957https://ronnyallan.net/2019/03/27/rosacea-the-net-effect/
Neuroendocrine Cancer: Somatostatin Receptor (e.g. Ga68, Cu64) PET Scans – a game changer?9884https://ronnyallan.net/2018/07/21/neuroendocrine-cancer-ga68-pet-scan-a-game-changer/
My tribute to Wilko Johnson #NeuroendocrineCancer – Rock and Roll Wilko!9647https://ronnyallan.net/2022/11/23/the-ecstasy-of-neuroendocrine-cancer-survivor-wilko-johnson/
Phase 3 CABINET Clinical Trial – Cabozantinib for Advanced Neuroendocrine Tumours9600https://ronnyallan.net/2023/08/26/in-the-news-neuroendocrine-tumour-drug-in-trial-cabozantinib/
Neuroendocrine Cancer – don’t break my heart!9574https://ronnyallan.net/2015/06/02/neuroendocrine-cancer-dont-break-my-heart/
Neuroendocrine Cancer is not a ‘type’ of another Cancer ….. PERIOD!9568https://ronnyallan.net/2018/09/03/neuroendocrine-cancer-is-not-a-type-of-another-cancer-period/
Irrfan Khan9557https://ronnyallan.net/2018/03/16/namaste-irrfan-khan/
Somatostatin Receptors9476https://ronnyallan.net/2016/07/25/net-cancer-somatostatin-receptors/
Histotripsy: A new technique which destroys cancer using soundwaves9192https://ronnyallan.net/2022/04/25/histotripsy-a-new-technique-which-destroys-cancer-using-soundwaves-now-in-clinical-trials/
Treatment for Neuroendocrine Cancer – a summary for patients9172https://ronnyallan.net/2021/03/07/treatment-for-neuroendocrine-cancer-a-summary-for-patients/
I’m still here9062https://ronnyallan.net/2015/07/26/im-still-here/
Genetics and Neuroendocrine Tumors8521https://ronnyallan.net/2017/10/02/genetics-and-neuroendocrine-tumors/
Shame on you!8351https://ronnyallan.net/2018/01/15/shame-on-you/
Neuroendocrine – don’t let it be a Crisis8308https://ronnyallan.net/2016/12/05/neuroendocrine-tumours-lets-give-carcinoid-crisis-a-red-card/
Immunotherapy: Studies with Neuroendocrine Neoplasms8268https://ronnyallan.net/2017/06/17/immunotherapy-for-nets-studies-with-neuroendocrine-neoplasms/
Dear every cancer patient I ever took care of, I’m sorry. I didn’t get it.8241https://ronnyallan.net/2016/11/29/dear-every-cancer-patient-i-ever-took-care-of-im-sorry-i-didnt-get-it/
Neuroendocrine Cancer Nutrition Series Article 3 – Gut Health8158https://ronnyallan.net/2015/08/27/neuroendocrine-cancer-nutrition-blog-3-gut-feelings/
Chemo or not Chemo – that is the question 8046https://ronnyallan.net/2016/11/23/chemo-or-not-chemo-that-is-the-question/
Neuroendocrine…..the little suckers get everywhere!7995https://ronnyallan.net/2015/08/18/neuroendocrine-the-little-suckers-get-everywhere/
Neuroendocrine Cancer: Troublesome Thyroids7877https://ronnyallan.net/2023/10/09/net-cancer-troublesome-thyroids/
In the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life7770https://ronnyallan.net/2017/03/21/in-the-war-on-neuroendocrine-cancer-lets-not-forget-to-win-the-battle-for-better-quality-of-life/
Neuroendocrine Tumours: a spotlight on Pheochromocytoma and Paraganglioma7674https://ronnyallan.net/2016/12/14/neuroendocrine-tumours-a-spotlight-on-pheochromocytomas-and-paragangliomas/
Telotristat Ethyl (XERMELO) – an oral treatment for Carcinoid Syndrome Diarrhea not adequately controlled by Somatostatin Analogues7578https://ronnyallan.net/2016/03/31/telotristat-ethyl-xermelo-an-oral-treatment-for-carcinoid-syndrome-diarrhea-not-adequately-controlled-by-somatostatin-analogues/
Theranostics for Neuroendocrine Cancer – A Find and Destroy Mission7529https://ronnyallan.net/2017/01/18/progress-report-on-netspot-and-prrt-lutathera/
The Invisible NET Patient Population 7496https://ronnyallan.net/2017/08/14/the-invisible-neuroendocrine-tumor-patient-population/
At home with Lanreotide (….and Octreotide)7133https://ronnyallan.net/2017/07/13/at-home-with-lanreotide/
A spotlight on Grade 3 (High grade) Neuroendocrine Neoplasms7091https://ronnyallan.net/2019/05/09/neuroendocrine-neoplasms-high-grade/
Opinion: Neuroendocrine Cancer – Can it be cured?7090https://ronnyallan.net/2017/10/16/can-nets-be-cured/
Update – Oncolytic Virus Trials for Neuroendocrine Cancer7086https://ronnyallan.net/2018/02/20/update-oncolytic-virus-trials-for-neuroendocrine-cancer/
Neuroendocrine Cancer Nutrition Series Part 6 – featuring the 2020 video series by Tara Whyand RD7064https://ronnyallan.net/2020/03/02/neuroendocrine-cancer-nutrition-series-part-6-featuring-the-2020-video-series-by-tara-whyand-rd/
Neuroendocrine Cancer: Fibrosis – an unsolved mystery?7048https://ronnyallan.net/2018/07/17/neuroendocrine-cancer-mesenteric-and-retroperitoneal-fibrosis-an-unsolved-mystery/
Neuroendocrine Cancer: Nodes, Nodules, Lesions (and false alarms!)6935https://ronnyallan.net/2017/01/17/neuroendocrine-cancer-nodes-nodules-lesions/
Somatostatin Analogues and delivery methods in the pipeline6846https://ronnyallan.net/2016/04/04/somatostatin-analogues-and-delivery-methods-in-the-pipeline/
Weight – the NET Effect6836https://ronnyallan.net/2017/10/09/did-you-mean-to-lose-weight/
Alcohol – the NET Effect6774https://ronnyallan.net/2016/01/15/alcohol-the-net-effect/
Neuroendocrine Cancer – diagnostic challenges: sometimes quiet, sometimes noisy6770https://ronnyallan.net/2023/10/15/neuroendocrine-cancer-shh-can-you-hear-it/
Things not to say to someone with cancer6759https://ronnyallan.net/2024/02/01/things-not-to-say-to-someone-with-cancer/
Diagnosis – I’m no longer in control6737https://ronnyallan.net/2023/08/27/im-no-longer-in-control/
Neuroendocrine – what’s that?6698https://ronnyallan.net/2015/05/01/neuroendocrine-whats-that/
Palliative Care – it might just save your life6651https://ronnyallan.net/2016/11/18/palliative-care-it-might-just-save-your-life/
Repeat after me: Maria Menounos has Neuroendocrine Cancer6607https://ronnyallan.net/2023/05/03/repeat-after-me-maria-menounos-has-a-neuroendocrine-cancer/
Cancer-related fatigue (CRF) – The NET Effect6597https://ronnyallan.net/2021/08/08/cancer-related-fatigue-crf-neuroendocrine-cancer/
Neuroendocrine Cancer: I Can6581https://ronnyallan.net/2016/05/09/i-can-do-it/
Neuroendocrine Cancer: Diagnosing the Undiagnosed6524https://ronnyallan.net/2018/09/07/diagnosising-the-undiagnosed/
Lanreotide – Four more years6504https://ronnyallan.net/2015/02/03/four-more-years/
Diabetes – The NET Effect6372https://ronnyallan.net/2018/09/16/diabetes-the-net-effect/
Coronavirus 19 (COVID-19): risks for cancer patients6304https://ronnyallan.net/2020/03/09/coronavirus-19-covid-19-risks-for-cancer-patients/
Olivia Williams – Neuroendocrine Cancer (VIPoma)6215https://ronnyallan.net/2019/11/16/olivia-williams-neuroendocrine-cancer-vipoma/
Don’t be underactive with your Thyroid surveillance6210https://ronnyallan.net/2018/02/12/dont-be-underactive-with-your-thyroid-surveillance/
Neuroendocrine Cancer: a needle in a haystack?6101https://ronnyallan.net/2018/12/19/neuroendocrine-cancer-looking-for-a-needle-in-a-haystack/
Neuroendocrine Cancer – my liver surgery6015https://ronnyallan.net/2016/04/12/neuroendocrine-cancer-my-liver-surgery/
Detectnet™ (64Cu-DOTATATE) – an expansion of the Somatostatin Receptor PET Imaging for Neuroendocrine Cancer5940https://ronnyallan.net/2018/08/30/64cu-dotatate-a-potential-addition-to-the-somatostatin-receptor-pet-imaging-for-neuroendocrine-cancer/
Neuroendocrine Cancer – a difficult jigsaw5910https://ronnyallan.net/2015/11/06/neuroendocrine-cancer-a-difficult-jigsaw/
Neuroendocrine Cancer – I didn’t hear it coming5815https://ronnyallan.net/2021/02/09/neuroendocrine-cancer-i-didnt-hear-it-coming/
Colonoscopy Comedy5717https://ronnyallan.net/2015/02/17/colonoscopy-comedy/
Proton Pump Inhibitors (…..and H2 Blockers) the NET Effect5531https://ronnyallan.net/2019/02/05/proton-pump-inhibitors-the-net-effect/
Clinical Trials of PV-10 (Rose Bengal) for the treatment of Neuroendocrine Tumours (NET)5529https://ronnyallan.net/2019/06/10/phase-1-clinical-trial-of-single-agent-pv-10-for-the-treatment-of-symptomatic-neuroendocrine-tumors-net-metastatic-to-the-liver/
Neuroendocrine Cancer – surveillance and follow up5371https://ronnyallan.net/2017/12/20/neuroendocrine-cancer-a-surveillance-society/
Neuroendocrine Cancer – not average, just mean5311https://ronnyallan.net/2016/08/25/neuroendocrine-is-not-your-average-cancer-but-it-can-be-pretty-mean/
Neuroendocrine Cancer – Liver directed therapy5269https://ronnyallan.net/2020/01/22/neuroendocrine-cancer-liver-directed-therapy/
The Heterogeneity of Neuroendocrine Neoplasms5260https://ronnyallan.net/2022/08/23/neuroendocrine-cancer-at-least-50-shades-of-grey/
Update from Ronny Allan: No evidence of progressive disease at any site5256https://ronnyallan.net/2023/09/05/i-may-be-stable-but-i-still-need-support-and-surveillance/
Categories, tissues and primary sites – the lost awareness of Neuroendocrine Cancer5193https://ronnyallan.net/2017/09/11/neuroendocrine-cancer-lets-raise-our-sites/
A spotlight on Multiple Endocrine Neoplasia (MEN)5125https://ronnyallan.net/2016/03/09/running-in-the-family-multiple-endocrine-neoplasia-men/
Small intestine, large surgery5119https://ronnyallan.net/2020/08/18/small-intestine-large-surgery/

Didn’t find what you’re looking for?  Google “Ronny Allan – insert your own term (e.g. surgery, chemotherapy, etc etc etc).  i.e. “Ronny Allan Surgery” and you will get any post tagged with the term “Surgery”

 
 

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. 

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.   

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

General Clinical Trials Disclaimer

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided in the clinical trials document. It’s very important to check the trial inclusion and exclusion criteria before making any contact.  If you need questions, the articles here is very useful Questions to Ask About Clinical Trials | Cancer.Net

The inclusion of any trial within this blog should not be taken as a recommendation by Ronny Allan. 

 
 
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Ronny

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Please Share this post for Neuroendocrine Cancer awareness and to help another patient

 
 
 

Carcinoid vs Neuroendocrine

OPINION  – There’s a constant debate regarding the validity of the term ‘Carcinoid‘.  I’ve posted about this a few times and as far as I know,

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Colonoscopy Comedy

Last year I wrote a series of articles on the ‘coping’ side of cancer, one of which was about still being able to have a

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A cup of tea


I would also mention those who contributed to my “Tea Fund” which resides on PayPal.  You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one.  Clearly, if you have a PayPal account, the process is much simpler 

Through your generosity, I am able to keep my sites running and provide various services for you.  I have some ideas for 2023 but they are not detailed enough to make announcements yet. 

This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)

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