Neuroendocrine Cancer – surveillance and follow up

Neuroendocrine Cancer – surveillance and follow up

Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship
If I had a pound for every time I've said "make sure you get good surveillance and follow up", I'd have a lot of pounds! Most Neuroendocrine Tumours are slow-growing and they can be difficult to diagnose due to their sneaky nature. Some can be just as sneaky beyond diagnosis though. The best way to combat that is through regular surveillance or 'follow-up'. There are actually guidelines and recommendations for follow-up on the main NET specialist societies such as ENETS, NANETS and UKINETS.  There's others including in USA, the NCCN also have a set (and no surprises that the different organisation guidelines can often differ due to the healthcare systems in place). For more detailed or the latest guidelines content, you may need a login or in one instance (ENETS)…
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Always thank your Nurse – sometimes they’re the only one between you and a hearse!

Always thank your Nurse – sometimes they’re the only one between you and a hearse!

Inspiration, Patient Advocacy, Treatment
I had minimal exposure to nurses throughout the first 55 years of my life.  I did spend a night in hospital when I was 16 having been knocked unconscious in the boxing ring (you should've seen the other guy). Bar the odd mandatory injection, I avoided both boxing and nurses for many years after that. You may remember I discussed how my cancer was diagnosed following a fairly innocuous conversation at my GP's Surgery in May 2010, see blog post 'Diagnosis - I'm no longer in control'.  That nurse was professional, thorough and she clearly went the extra mile for her patients.  She has my eternal thanks for sending me down a different path in the game of chance that is life.  I often wonder where I would be now had she not ordered the 'just…
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