Archives: Testimonials

Customer Testimonials

Kanga Health

"Proud to have worked on this project with some marvellous people including Ronny Allan (NET Cancer Blog)" I worked with Kanga Health on the Ipsen patient website "Living with NETs" - check it out!

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Cancer Knowledge Network

“You are a wonderful voice in cancer advocacy” Check out the articles featured by CKN: Sorry I'm out of service I woke up on NET Cancer Day

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Arisen Strength Motivational Podcast

"Ronny Allan is dedicated to making a difference! And that makes him MORE than the challenges he faces!" Also checkout my Podcast which was produced by Arisen Strength for WEGO Health

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Macmillan Cancer Support

"Brilliant Blogger" I also help out with Macmillan campaigns in addition to being a Community Champion supporting other patients.

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WEGO Health

2016 Best in Show: Community winner. "Internationally known Neuroendocrine Cancer Patient Leader - Ronny Allan is certainly making his mark on the online health community" [caption id="attachment_9291" align="alignnone" width="448"] 2016 WEHO Health Awards[/caption]

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Carcinoid Cancer Foundation

"Blogs by Ronny Allan are a must read"

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Never mind the Bollocks – here’s the cancer

I don’t tend to share some very personal stuff, but this is on the boundary of that rule and there are some important messages to be teased out. For those who follow my blog in detail, you may remember the post entitled “Neuroendocrine Cancer – Signs, Suspicions, Symptoms, Syndromes, Side-Effects, Secondary Illnesses, Comorbidities, and Coincidences” […]

First and only FDA-cleared, fully automated chromogranin A assay

There has been controversy about the utility of Chromogranin A for many years now. Specialists have been critical about its use but to be fair even those less critical still confirm that alone it would not be trusted to formally diagnose Neuroendocrine Cancer. That said, it was still controversial when certain US guidelines were updated […]

Neuroendocrine Cancer: Question, Clarify, Confirm

One of the many observations I make in my private Neuroendocrine Cancer Facebook group is the misunderstandings caused by the use of non-standard terminology combined with a lack of understanding of what is up to date or not. And I don’t always mean a misunderstanding by patients. If I am to believe doctors uttered some […]

Clinical Trial – Lutathera NETTER-2 Important Update

UPDATE – Sep 25th, 2023 – Novartis radioligand therapy Lutathera® demonstrated statistically significant and clinically meaningful progression-free survival in first line advanced gastroenteropancreatic neuroendocrine tumors (GEP-NETs) Phase III NETTER-2 trial met primary endpoint of improvement in progression-free survival (PFS) and key secondary endpoint of objective response rate (ORR) in patients with Grade 2 and 3 […]

Lanreotide: Ipsen injection devices vs generic injection devices

Whenever I get a chance to talk to a pharma involved in somatostatin analogue injection devices, I tell them one very important thing …… “To the patient, the injection delivery is almost as important as the drug”. I also add that my opinion is based on thousands of comments about the patient experience in my […]