Ronny Allan – Living with Neuroendocrine Cancer

Scanxiety – I just don’t get it!

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OPINION

The internet is full of blogs and articles about a subject which is described as ‘scanxiety‘ – the joining of the words ‘scan’ and ‘anxiety’. I also noted some authors using the words ‘scanxiety’ and ‘anxiety’ interchangeably which in my opinion is clearly wrong as by definition it is only an anxiety about scans and I guess incorporates the results of scans.  Not that we need separate names – at the end of the day, it’s just anxiety regardless of whether it is waiting on the results of a biopsy, blood test, urine test, or anything else related to an illness.  No-one goes around saying ‘blood-testxiety’ or ‘biopsyxiety’. Why just scans?

‘Scanxiety’  – I just don’t get it  ……or more accurately I just don’t get overly anxious about having a scan or getting the results of a scan. Why? Because testing (scans in particular) is the one thing that’s going to keep me alive for as long as possible.  I was diagnosed in 2010 thanks to the trigger of precautionary tests including a scan. I now live with the knowledge (and I accept this fact) that there are still bits of cancer inside me.  If I am not regularly tested, there is a chance I will eventually succumb to a serious or irreversible problem which should have been spotted earlier. Even in the event of ‘not so good news’ following a routine surveillance scan, I still see that as a positive because it means the surveillance regime has worked and an investigation can be commenced to more accurately localise and treat the problem. Even if you are in the diagnostic phase and a scan is ordered, you need to get right inside that machine and get it over and done with.  It just might save your life.

The test results will be what the test results will be and personally I try to save any worry until I know if I have anything to worry about.

Many cancer patients are under surveillance for a long time and are tested regularly. As an incurable cancer patient myself, I sometimes feel like I’m in a perpetual state of testing. I suspect if I was to let anxiety get the better of me, perhaps I’ll end up being a perpetual state of anxiety.   That’s not a good place. 

I’m not that insensitive to forget that some people do probably get anxious about actually climbing into a scanner, particularly if they are claustrophobic but that is already a recognised anxiety issue rather than so-called scanxiety.  I also suspect people will be anxious about their relatives having scans, particularly the first diagnostic scan, worse when young ones are involved and I totally get that. Anxiety (as opposed to so called scanxiety) is a pretty natural reaction.  However, to control your fears, you need to face them and then try not to let your anxiety filter down to others.  I think people naturally and automatically try to do that without thinking.

‘Scanxiety’ – I just don’t get it.  As for the 51,600 search results on the internet, I just don’t get that either!

Some people might think the above post is a tad harsh.  If that rings true for you, please see this post published almost 7 years later.

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Thanks for reading.

Ronny

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