Skip to content
  • About
    • Home
    • My Diagnosis and Treatment
    • Recommendations
    • Disclaimer
    • Patient Support Group
  • COVID-19 Crisis
    • I will take the vaccine, no question
    • Coronavirus 19 (COVID-19): risks for cancer patients
    • COVID-19 and Cancer Treatment and Surveillance
    • Why Coronavirus Anxiety is Hard to Control – a Neuroendocrine Cancer patient perspective
    • My Self Isolation Diary – COVID-19
  • Epidemiology
    • Neuroendocrine Neoplasms – not as rare as you think
    • The Invisible NET Patient Population 
  • Diagnosis
    • 10 questions to ask your doctor
    • Where to find a NET Specialist worldwide
    • Neuroendocrine Neoplasms – Grade and Stage (incorporating WHO 2019 changes)
    • Marker Tests
      • Tumour markers and Hormone Levels
    • Imaging
      • Scans for Neuroendocrine Cancer
      • Gallium 68 PET Scans – Into the Unknown
      • Ga68 PET Scan – a game changer?
    • A needle in a haystack?
    • Diagnosing the Undiagnosed
  • Syndromes
    • The Syndromes of Neuroendocrine Cancer – Early Signs of a Late Diagnosis
    • Hormones
    • Serotonin – the NET effect
    • Neuroendocrine Cancer: A Witch’s Brew
  • Treatments
    • Surgery
      • Surgery for Neuroendocrine Neoplasms – to cut or not to cut?
      • My Neuroendocrine Cancer Surgery – Small Intestine NET, a patient experience (part 1)
      • My Neuroendocrine Cancer Surgery – a patient experience (part 2)
      • Small intestine, large surgery
      • My liver rescetion
      • My lymphadenectomy
      • Surgery is risky but so is driving a car
      • Surgery for NETs – Chop Chop
    • Liver Embolization (bland, chemo, radio)
    • Somatostatin Receptors
    • Somatostatin Analogues
      • Lanreotide: Ten more years please!
      • Lanreotide vs Octreotide
      • Lanreotide – it’s calling the shots!
      • At home with Lanreotide (….and Octreotide)
      • Somatostatin Analogues and delivery methods in the pipeline
    • Peptide Receptor Radionuclide Therapy (PRRT)
    • Everolimus (Afinitor)
    • Sunitinib (Sutent)
    • Chemotherapy
    • Telotristat Ethyl (XERMELO®)
  • Diet & Nutrition
    • Article 1 – Vitamin and Mineral Challenges
    • Article 2 – Gastrointestinal Malabsorption
    • Article 3 – Gut Health
    • Article 4 – Food for Thought?
    • Article 5 – Pancreatic Enzyme Replacement Therapy (PERT)
    • Article 6 – featuring the 2020 video series by Tara Whyand RD
  • Clinical Trials
  • Award Winning Blog
  • The A to Z of Neuroendocrine Cancer
  • Patient Support Group

Category: Survivorship

Thanks a MILLION …and another half!

January 3, 2021
Read More »

If it’s not raining, it’s not training! (part 2)

November 15, 2020
Read More »

Paraneoplastic endocrine syndromes – the NET effect

July 28, 2020
Read More »

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 7) – A story of swans, cycling, VE Day and my 124th monthly cancer treatment

December 2, 2020
Read More »

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 6) – A story of footpath etiquette, sheep, donkeys and dopamine

December 2, 2020
Read More »

Why Coronavirus Anxiety is Hard to Control – a Neuroendocrine Cancer patient perspective

April 5, 2020
Read More »

Coronavirus 19 (COVID-19): risks for cancer patients

January 2, 2021
Read More »

Neuroendocrine Cancer: The Perfect Storm

August 26, 2020
Read More »

Neuroendocrine Cancer: Double, Double Toil and Trouble

October 31, 2019
Read More »

The Flu shot – it’s not just about you

December 17, 2020
Read More »

I’m not sick, I just have cancer

June 2, 2020
Read More »

RonnyAllan.NET – Community Newsletter Covering November 2018

November 30, 2018
Read More »

Neuroendocrine Cancer – is normally slow growing BUT …..

September 8, 2019
Read More »

RonnyAllan.NET – Community Newsletter Covering October 2018

November 2, 2018
Read More »

Living with Cancer – Worrier or Warrior?

November 17, 2019
Read More »

Neuroendocrine Cancer – Short Update from NANETS 2018

October 10, 2018
Read More »

Neuroendocrine Cancer – on your bike!

June 10, 2020
Read More »

RonnyAllan.NET – Community Newsletter Covering September 2018

October 7, 2018
Read More »

Diabetes – The NET Effect

December 31, 2020
Read More »

RonnyAllan.NET – Community Newsletter Covering August 2018

September 11, 2018
Read More »

RonnyAllan.NET – Community Newsletter JULY 2018

July 31, 2018
Read More »

Neuroendocrine Cancer: Ga68 PET Scan – a game changer?

November 14, 2019
Read More »

RonnyAllan.NET – Community Newsletter JUNE 2018

July 2, 2018
Read More »

RonnyAllan.NET – Community Newsletter May 2018

June 13, 2018
Read More »

Gallium 68 PET Scans – Into the Unknown

December 17, 2020
Read More »

RonnyAllan.NET – Community Newsletter April 2018

May 2, 2018
Read More »

RonnyAllan.NET – Community Newsletter March 2018

April 3, 2018
Read More »

RonnyAllan.NET – Community Newsletter February 2018

March 16, 2018
Read More »

Things to do today

October 12, 2018
Read More »

Don’t be underactive with your Thyroid surveillance

October 26, 2019
Read More »

RonnyAllan.NET – Community Newsletter January 2018

February 2, 2018
Read More »

I now take food with my medicine!

May 12, 2020
Read More »

Shame on you!

October 21, 2019
Read More »

Neuroendocrine Cancer and Pancreatic Enzyme Replacement Therapy (PERT) – the Digested Version (Nutrition Series Article 5)

April 20, 2020
Read More »

NETwork with Ronny © – Community Newsletter DECEMBER 2017

January 1, 2018
Read More »

Neuroendocrine Cancer – surveillance and follow up

November 19, 2020
Read More »

NETwork with Ronny © – Community Newsletter NOVEMBER 2017

December 8, 2017
Read More »

NETwork with Ronny © – Community Newsletter OCTOBER 2017

November 1, 2017
Read More »

Round up of NANETS 2017 – Let’s talk about NETs #NANETS2017

October 25, 2017
Read More »

Neuroendocrine Neoplasms – Can they be cured?

September 17, 2019
Read More »

Weight – the NET Effect

April 30, 2020
Read More »

The shock effect never wears off

July 15, 2019
Read More »

Genetics and Neuroendocrine Tumors

May 18, 2020
Read More »

Cancer Isn’t All About Me

March 26, 2019
Read More »

NETwork with Ronny © – Community Newsletter SEPTEMBER 2017

June 25, 2018
Read More »

NETwork with Ronny © – Community Newsletter AUGUST 2017

September 3, 2017
Read More »

NETwork with Ronny © – Community Newsletter JULY 2017

August 1, 2017
Read More »

NETwork with Ronny © – Community Newsletter JUNE 2017

July 10, 2017
Read More »

Ronny Allan’s ‘PoNETry’ © – An Ode to Invisible Illness

May 11, 2020
Read More »

Living with Neuroendocrine Cancer – 8 tips for conquering fear

October 18, 2020
Read More »

NETwork with Ronny © – Community Newsletter MAY 2017

June 9, 2017
Read More »

NETwork with Ronny © – Newsletter April 2017

May 4, 2017
Read More »

The trouble with the NET (Part 3) – Miracle Cures

February 27, 2019
Read More »

Diagnosed with Neuroendocrine Cancer? – 10 questions to ask your doctor (and where to find a NET Specialist Worldwide)

October 15, 2020
Read More »

Don’t believe the hype – Neuroendocrine Cancer Myths debunked

November 9, 2020
Read More »

NETwork with Ronny © – Newsletter March 2017

April 1, 2017
Read More »

In the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life

April 7, 2019
Read More »

Poker Face or Cancer Card?

January 27, 2019
Read More »

NETwork with Ronny © – Newsletter February 2017

March 1, 2017
Read More »

It’s been 5 years since I saw a scalpel (….but my surgeon is still on speed dial)

February 14, 2018
Read More »

25 Life Lessons From a Two-Time Cancer Survivor

February 27, 2019
Read More »

Things not to say to someone with cancer

January 19, 2019
Read More »

NETwork with Ronny © – Newsletter January 2017

February 1, 2017
Read More »

Road ahead closed – Bowel Obstructions

August 11, 2018
Read More »

Neuroendocrine Cancer: Nodes, Nodules, Lesions (and false alarms!)

April 10, 2020
Read More »
Page1 Page2
WordPress HashThemes