Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients
Living with Neuroendocrine Cancer – Home Page
Welcome to the blog site of Ronny Allan who was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, symptoms of iron deficiency and facial flushing (Carcinoid Syndrome). In this blog, Ronny discusses various aspects of his cancer, his treatment, and his daily life in terms of changes he had to make.
Factual, educational and the occasional pinch of humour, Ronny aims to put a positive spin on his life. He also uses the blog to spread awareness of this unusual, less common and complex disease including any related issues. He is passionate about moving Neuroendocrine Cancer into mainstream knowledge circles. He also occasionally blogs about other cancers in the news and related general cancer issues.
In 2016, Ronny was nominated for 6 awards, made it to the final in 2 of them and then won the annual WEGO Health Activist category of “Best in Show: Community”. This is a significant milestone for the Neuroendocrine Cancer community which comprises those who support Ronny on this page and also on Twitter, Facebook, Pinterest, Instagram and Google Plus. In 2017, Ronny was nominated for 3 WEGO awards and managed to get into the final 5 patient leaders in all 3 nominations. In 2018, Ronny was nominated for 5 WEGO Awards.
Ronny is a contributor to Cure Magazine and you can read his articles by clicking here
Northwoods NETS (Minnesota Carcinoid & Neuroendocrine Cancer Support Group) wrote: “He’s published a number of fantastic articles that take very technical topics and make them completely accessible for patients and their families to understand”
Dr Eric Liu (Internationally Recognized Neuroendocrine Tumor Surgeon) wrote: “Great blog Ronny. Thank you for sharing” and “great job with the blogs. Keep up the good work” Maggie commented: “Carry on your good work Ronny, my consultant says he learns a lot from you!”
Lorrie commented: “There is a reason I keep coming back here again and again, and rereading your blogs – you have become a calming force in my life!”
Les tweeted: “Ronny Allan is simply inspirational”
Dorothy wrote: “You light up our lives Ronny”
Liz wrote: “Your posts and words are so very very important for helping people understand more. In terms of awareness, your methods are 100 times more potent than a zebra picture“
Roddy wrote: “As a newcomer observer of the world of NETs, it is amazing how much is happening, your blog and links and advocacy are gold dust”
Billy wrote: “I am always happy when I get a notification (one of very few that I allow) that you have posted something new to your blog. I appreciate your honesty and your approach towards the subjects you address. I can always count on knowing that you give a fair and balanced perspective. Thanks for that“
Teresa wrote:“Thank you so much. We have so many “blogs” websites, etc., that seem to cause me more anxiety than help. It is so refreshing to read your blogs. I always learn something new”
Su En wrote: “I am so happy that I have found you Ronny. You are expressing exactly how I feel and I no longer feel alone. Thank you so much for sharing your knowledge and experience”
Marilyn wrote: “Wonderfully written, poignant and, most importantly, so encouraging! Thank you!”
Dave wrote: “I’m very happy to have found your blog. You do a great job of educating without scaring”
Genevieve wrote: “It’s a very comforting thing to me! Please don’t ever stop!”
Helen wrote: “Ronny Allan’s blog is the greatest. A mine of information“
‘Vanuitdebuik’commented: “I am more convinced than before that patient stories are so important to the medical world (doctors, surgeons, pathologists, pharma industry, etc.) and for fellow patients. That proves the inspirational blog of Ronny Allan. What he does with his blog is phenomenal. He is an association on his own.”
Theresa wrote: “Thank you for such a great blog. I have been following it and you provide information that should be published in a manual that every NET patient would benefit from the day they are diagnosed!”
Susan wrote: “Ronny, I’m so thankful for your well written blog. You may well help to save someone’s life”
Alex wrote: “The information in your blogs on everything from initial discovery to all the new drugs etc has made such a difference for me. I just wanted you to know that what you do is valued and absolutely worth it”
Sean wrote: “Thank you for helping me through the tough times with your blogs, you have genuinely changed the way I think for the better“
Ed wrote: “You do such a great job raising awareness and your articles are so full of useful information. I just wanted to say thank you!”
Sue wrote: “The closest NET support group is over 300 kilometres away from here, so I use Ronny’s Blog as my support and inspiration”
Cheryl (Psy.D) wrote: “Great guy & great blog. Never ending commitment to neuroendocrine disease & neuroendocrine cancer”
Lyn wrote: “You’ve given me the greatest gift … you’ve given me hope”
Paula wrote: “You should write a book! I would definitely buy”
Michael wrote: “The medical data, insight and experience Ronny collates and shares on his website and FB page on this disease (NET cancer) have been an enormous source of information and hope for me and my family.
Gaynorwrote: “To be honest, I don’t go anywhere else”
Lisa wrote: “Ronny is the most valuable resource that NET Cancer peeps have”
Leena wrote: “You do such great work even for us who have Neuroendocrine Carcinoma (NEC), God bless you!
Selected Featured Blog Posts:
Ronny’s blogs have been featured by various organisations – here’s a selection:
Please note all information provided in this blog is Ronny’s own views and opinions and is therefore strictly for educational or discussion purposes. Moreover, it does not constitute professional medical advice, diagnosis, treatment, or care. Furthermore, it does not necessarily reflect the views or opinions of his medical team, Cancer Research UK, Macmillan, Carcinoid Cancer Foundation, NET Patient Foundation, or any other organisation or person with whom he may be directly or indirectly associated. Full Disclaimer – click here
Please note this site is totally non-profit, is not aligned to a particular non-profit organisation. Whilst efforts have been made to update, any reference to fund-raising found will be related a now expired and closed event. Additionally, any referencing of organisations which have a fundraising function is for their non-fundraising technical content and is not in any way a suggestion you should donate to the organisation being referenced. No buying or selling allowed. All posts are moderated.
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