I do a lot of writing about NETs but I guess I’ve also done some talking too. Some of these talks to patient groups and healthcare professionals were recorded and I have access to those recordings. Others were not recorded but where possible and I am authorised to do so, I will attach the presentation slides. Please note videos, presentation slides, and any Podcasts are in English.
I’ll list some of them below for your perusal. I will keep adding them so they’re all in one place.
I was invited by Gordon Mackay who runs patient meetings for the Scottish NET organisation known as the Ann Edgar Trust. As usual, I was only too happy to help. The subject was based on my own story adding some patient perspectives. I must emphasise that these are clearly my own views, but I do hope those browsing through the presentation will get some benefit. Please click on the blue link below or the lead presentation graphic.
Click here on the title: Ann Edgar Trust presentation by Ronny Allan – 31st Aug 2022
I was invited by their President Jackie Herman to talk to patients and caregivers via a CNETS Canada-sponsored webinar. The topic was “patient perspective and journey”. Have a listen by clicking on the picture below (or here).
Ipsen Pharma - 2016
I was invited by Ipsen to help produce some videos for a website they were building – it’s called “Living with NETs” and I also helped them, along with other patients, with the requirements for the content. The video below was my patient story but there were around a dozen videos featuring me in total.
Neuroendocrine Cancer UK 2021
I was invited to talk to the Neuroendocrine Cancer UK World NET Day Conference by their CEO Cathy Boulevard. The topic I was asked to cover was “Becoming Your Own Expert“. Have a listen.
Middle East NET Society - 2021
I was invited to talk to the Middle East World NEN Lives Conference by my friend Mike Rosenberg. The topic Mike gave me was “Living with NETs as a Chronic Disease”
WEGO Health - 2016
Not a video but a podcast, basically you get to listen to me without seeing me! This was a special podcast after winning the first of my three awards in the WEGO Health Awards, Best in Show Community award 2016. Check it out!
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional as they are not members of the private group or followers of my sites in any official capacity. Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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