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What is the ‘Patients Included’ charter?
The Patients Included patient information resources charter provides organisations with a means of demonstrating their commitment to incorporating the experience of patients as experts in living with their condition by ensuring their involvement in the authoring of information concerning a given disease. You can find out more about the patients included charter by clicking here.
I am a big believer that patients should be included in all aspects of healthcare, and I can very much relate to this initiative. I’m now listed as accredited site here.
1. Patients participate in the co-creation, delivery, and review of the resources produced.
2. The disability requirements of participants are accommodated.
As far as is practicable, I will format my online services to ensure access for all. I have added a language widget for basic translation into numerous languages.
3. Patients are provided with the necessary support to fully contribute.
All of my activity is online and all published blog articles and pages have comments enabled. The site is able to be followed through subscription via another blog account or by email. Some of the collaboration with other patients (including non-NETs) is done via messaging or online video channels.
4. All resources must be freely accessible either in print and/or digitally from the internet or via a mobile app.
My content is completely free and accessible to all online. I have a coffee fund set up, but contributions are not mandatory.
5. All resources must be patient-centred, free of jargon and undefined acronyms, and prepared in plain language.
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Summary of May 2023 on RonnyAllan.NET
Summary May produced the best statistics in 2023, mainly due to your support for my blog post on Maria Menounos whose announcement headlined as “Pancreatic
Getting back in the saddle
Those who follow my Facebook page Ronny Allan may remember my cycling faux pas in April causing me to bruise or fracture a rib (here
Clinical Trial: Phase 1/2a Study of 23ME-00610 in Patients With Advanced Solid Malignancies (incl Neuroendocrine Neoplasms)
Who are 23andMe? I personally had not heard of 23andMe but many people in North America might have. When you first look at what they
A spotlight on Chromogranin A
What is Chromogranin A? Chromogranin A (CgA) is an acidic protein released along with catecholamines from chromaffin cells and nerve terminals. This statement alone might
Neuroendocrine Cancer: Catch them early, not late!
Diagnosing Neuroendocrine Neoplasms (NENs). It’s no secret that Neuroendocrine Neoplasms (NENs) can be difficult to diagnose, particularly well differentiated slow growing types (NETs) which can
A spotlight on Rectal Neuroendocrine Neoplasms
What are Rectal NENs Rectal Neuroendocrine Neoplasms (NENs) (rNENs) account for approximately 1-2% of all primary cancers in the rectum. The other main cancer types
Clinical Trial: Novel Somatostatin Receptor Subtype 2 Antagonist Labelled With Terbium-161 (161Tb-DOTA-LM3) (Beta plus)
A new clinical trial post. What is Terbium-161 (161Tb-DOTA-LM3) (Beta plus). Terbium-161 is a radioactive substance. DOTA-LM3 is a novel somatostatin antagonist targeted using somatostatin
Repeat after me: Maria Menounos has Neuroendocrine Cancer
Like many people from outside USA, I don’t really know anything about Maria Menounos. For those in the same boat, let me confirm she is
Summary of April 2023 on RonnyAllan.NET
Summary of RonnyAllan.NET website activity in April 2023 The top 10 most read posts in April are included below as the main product of this summary
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)