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What is the ‘Patients Included’ charter?
The Patients Included patient information resources charter provides organisations with a means of demonstrating their commitment to incorporating the experience of patients as experts in living with their condition by ensuring their involvement in the authoring of information concerning a given disease. You can find out more about the patients included charter by clicking here.
I am a big believer that patients should be included in all aspects of healthcare, and I can very much relate to this initiative. I’m now listed as accredited site here.
1. Patients participate in the co-creation, delivery, and review of the resources produced.
2. The disability requirements of participants are accommodated.
As far as is practicable, I will format my online services to ensure access for all. I have added a language widget for basic translation into numerous languages.
3. Patients are provided with the necessary support to fully contribute.
All of my activity is online and all published blog articles and pages have comments enabled. The site is able to be followed through subscription via another blog account or by email. Some of the collaboration with other patients (including non-NETs) is done via messaging or online video channels.
4. All resources must be freely accessible either in print and/or digitally from the internet or via a mobile app.
My content is completely free and accessible to all online. I have a coffee fund set up, but contributions are not mandatory.
5. All resources must be patient-centred, free of jargon and undefined acronyms, and prepared in plain language.
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Please Share this post for Neuroendocrine Cancer awareness and to help another patient
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Digestive Neuroendocrine Carcinoma
This ENETS guidance paper, developed by a multidisciplinary working group, provides up-to-date and practical advice on the diagnosis and management of digestive neuroendocrine carcinoma, based
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for gastric neuroendocrine tumours (NETs) G1–G3
The ENETS 2023 guideline for gNETs are combined with the guidelines for Duodenal NET (dNET) due to their close relationship in anatomical terms. Gastric neuroendocrine
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Duodenal neuroendocrine tumours (NETs) G1–G3
The ENETS 2023 guideline for dNETs are combined with the guidelines for Gastric NET (gNET) due to their close relationship in anatomical terms. But there
D Day I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea
Another episode in the expert opinion series. I thought this might be useful for some of you after an interesting ‘google alert’ brought up these
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)