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Ronny Allan
What is the ‘Patients Included’ charter?
The Patients Included patient information resources charter provides organisations with a means of demonstrating their commitment to incorporating the experience of patients as experts in living with their condition by ensuring their involvement in the authoring of information concerning a given disease. You can find out more about the patients included charter by clicking here.
I am a big believer that patients should be included in all aspects of healthcare, and I can very much relate to this initiative. I’m now listed as accredited site here.
1. Patients participate in the co-creation, delivery, and review of the resources produced.
2. The disability requirements of participants are accommodated.
As far as is practicable, I will format my online services to ensure access for all. I have added a language widget for basic translation into numerous languages.
3. Patients are provided with the necessary support to fully contribute.
All of my activity is online and all published blog articles and pages have comments enabled. The site is able to be followed through subscription via another blog account or by email. Some of the collaboration with other patients (including non-NETs) is done via messaging or online video channels.
4. All resources must be freely accessible either in print and/or digitally from the internet or via a mobile app.
My content is completely free and accessible to all online. I have a coffee fund set up, but contributions are not mandatory.
5. All resources must be patient-centred, free of jargon and undefined acronyms, and prepared in plain language.
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Please Share this post for Neuroendocrine Cancer awareness and to help another patient
Surgery for NETs – Chop Chop
May 2024. a refurbish from some of my early work in 2015. I’m fairly sure not a lot has changed in surgery over the years.
A Review of April 2024 on RonnyAllan.NET
Here is the monthly summary of what we all achieved in April 2024. Something new, something blue and some borrowed too! Every share helps someone
I’m only as good as my last scan
“I’m only as good as my last scan”. I once received this comment in response to one of my posts. I thought it was a
Happy 10th birthday to my Blog Ronny Allan – Living with Neuroendocrine Cancer (RonnyAllan.NET)
On 29th April 2014, I release my first post entitled “What’s it all about” i.e. why on earth am I writing a blog! It was
Neuroendocrine – what’s that?
I once met some fellow cancer advocates and the conversation turned to what inspired us to ‘do what we do’. When it came to my
The trouble with the NET (Part 2) – Alternative Therapies – what’s the harm?
But it works, I read it on the internet! “But it works… I read it on the internet!”You may remember my article entitled The trouble
‘Chinese Dumplings’ and Neuroendocrine Cancer
Update of one of my posts from 2015 which was interesting in that year. This is not really about a treatment which is available everywhere
“An odd disposition of tumours” – less common metastases in Small Intestine and Pancreatic NETs
Every day is a learning day in NET! When I was diagnosed in 2010, my Oncologist sent me for a specialist scan that would help
Chemotherapy for Neuroendocrine Cancer
Edited and checked April 2024One of the unusual aspects of Neuroendocrine Cancer is that chemotherapy is not normally considered as a ‘standard of care’ or
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)
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