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Welcome to the website of Ronny Allan who was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, symptoms of iron deficiency and facial flushing (Carcinoid Syndrome).
If you’re specifically looking for Ronny’s Blog, please look for the menu system (it will look differently if you’re on a desktop PC or a handheld device. If you wanted to read my most popular posts, click on the link or picture below.
On this site, Ronny discusses various aspects of his cancer, his treatment, and his daily life in terms of changes he had to make. More detail of the background to Ronny’s diagnosis and treatment can be read by clicking here.
In addition, Ronny offers hundreds of articles on many different subjects, all meticulously researched from the most eminent sources. Some key posts are filtered below on a menu system as found on his website.
He also occasionally writes about other cancers in the news and related general cancer issues. Factual, educational, positive, and the occasional pinch of humour, he also uses this site to spread awareness of this unusual, less common and complex disease including any related issues. He is passionate about moving Neuroendocrine Cancer into mainstream knowledge circles to ensure maximum awareness.
Board Memberships and Associations:
- Ronny was a member of the 2019 WEGO Health Patient Leader Advisory Board.
- Ronny is a member of the Patient Advisory Board supporting Ipsen’s patient website Living With NETs
- Ronny was a member of the 2022 Health Union Patient Leadership Council. Read more here.
- Ronny has been a member of various projects in healthcare including pharmacutitcal companies.
- Ronny is a member of Macmillan Cancer Support Innovation Community
Awards and Nominations
- In 2016, Ronny was nominated for 6 WEGO awards, made it to the finals in 2 (Blog and Community) and then won the annual WEGO Health Activist category of “Best in Show: Community”. This was not only a significant milestone for Ronny but also the Neuroendocrine Cancer community in general.
- In 2017, Ronny was nominated for 3 WEGO awards and made it into the finals in all 3 nominations.
- In 2018, Ronny was nominated for 5 WEGO Awards and was a WINNER in the ‘Best in Show: Blog’ category.
- In 2021, Ronny was nominated for 12 WEGO Awards, in the final for two of them and was a WINNER in the Lifetime Achievement category
- Click here to hear my WEGO sponsored podcast.
Accreditations
RonnyAllan.NET is accredited ‘Patients Included’ site and displays the tick icon below. Every post has patient input. Click here or the icon below to find out more.
Magazine Contributions and Features
- Ronny is a contributor to Cure Magazine and you can read his articles by clicking here.
- Ronny has been featured by the NET Research Foundation via the article “Research Today is the Treatment of Tomorrow” – click here to read the article.
Recommendations and Reviews
- Read what others say by clicking here.
Presentations
Ronny has presented to many audiences, face to face and online. Some of these presentations are available online. Click the picture below or click here to see some of them.
Contact Ronny Allan:
Please ‘Like’ Ronny’s ‘Neuroendocrine Cancer’ public Facebook page (click here and ‘Like’)
Please also ‘Like’ my public Facebook page (click here and ‘Follow’)
Connect with Ronny on Twitter (click and then follow)
Connect with Neuroendocrine Cancer on Twitter (click and then follow)
Connect with World Neuroendocrine Cancer Day on Twitter (click and then follow)
Connect with Ronny on Pinterest (click and then follow)
Connect with Ronny on Instagram (click and then follow)
Ronny’s most read articles can be found here or by browsing the site: Most Popular Posts (CLICK)
He supplements his WordPress blog activity by running the biggest and most popular Patient Support Group.
Sometimes you just got to climb that hill!
General Clinical Trials Disclaimer
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided in the clinical trials document. It’s very important to check the trial inclusion and exclusion criteria before making any contact. If you need questions, the articles here is very useful Questions to Ask About Clinical Trials | Cancer.Net
The inclusion of any trial within this blog should not be taken as a recommendation by Ronny Allan.
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
Thanks for reading.
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My Diagnosis and Treatment History
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Please Share this post for Neuroendocrine Cancer awareness and to help another patient
A Review of April 2024 on RonnyAllan.NET
Here is the monthly summary of what we all achieved in April 2024. Something new, something blue and some borrowed too! Every share helps someone
I’m only as good as my last scan
“I’m only as good as my last scan”. I once received this comment in response to one of my posts. I thought it was a
Happy 10th birthday to my Blog Ronny Allan – Living with Neuroendocrine Cancer (RonnyAllan.NET)
On 29th April 2014, I release my first post entitled “What’s it all about” i.e. why on earth am I writing a blog! It was
Neuroendocrine – what’s that?
I once met some fellow cancer advocates and the conversation turned to what inspired us to ‘do what we do’. When it came to my
The trouble with the NET (Part 2) – Alternative Therapies – what’s the harm?
But it works, I read it on the internet! “But it works… I read it on the internet!” You may remember my article entitled The
‘Chinese Dumplings’ and Neuroendocrine Cancer
Update of one of my posts from 2015 which was interesting in that year. This is not really about a treatment which is available everywhere
“An odd disposition of tumours” – less common metastases in Small Intestine and Pancreatic NETs
Every day is a learning day in NET! When I was diagnosed in 2010, my Oncologist sent me for a specialist scan that would help
Chemotherapy for Neuroendocrine Cancer
Edited and checked April 2024 One of the unusual aspects of Neuroendocrine Cancer is that chemotherapy is not normally considered as a ‘standard of care’
Carcinoid vs Neuroendocrine
OPINION – There’s a constant debate regarding the validity of the term ‘Carcinoid‘. I’ve posted about this a few times and as far as I
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)