The 3 x Award-Winning Blog and Community by Ronny Allan – Living with Neuroendocrine Cancer

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Hi!

You’ve reached the website and blog of Ronny Allan.  Glad you found this page, as there is a mountain of information, all carefully researched where applicable.  This post is a list of your favourite posts as voted by you, the reader.  How do you vote?  Simple, you read posts that interest you, that pushes them up the league table over time.  If you really like a particular post, you can easily share it too.  

If your favourite post is not listed, just let me know, I’ll market it on your behalf. 

Keep reading

My home page explaining who I am in more detail can be found here:

…. and click the picture for my diagnostic and treatment summary
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As of August  25th 2023. Shortcuts to my most read articles (over 5,000 views). Those listed individually have viewing counts over 20,000, the remainder is in a table (just keep scrolling) – click on the article title links on the left column to read, and please feel free to share. Does not include the home page which is currently running at over 82,000 views.

Today – the following figure is the total number of views of my blog! Can you help me get to 3 million?
  • 2,256,797 views

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. 

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.   

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

What are the most-read blog posts in the last 48 hours?

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Did you know this is an award-winning blog? 

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Hey reader - you're an award winner too!
3 finals, it was hard work winning this coveted award
Just getting started!
Appreciated by healthcare professionals
Truly humbled by this comment

Most read posts

Posts listed individually below have viewing counts over 20,000, just click the picture to read.  The remainder (5,000-19,999) are in a table where you need to click on the article title links on the left column to read.  Please feel free to share anything you want. 

Keep scrolling down
Number 1 with almost 60,000 hits!
Number 2 with over 53,000 hits!
Number 3 with almost 46,000 views
Number 4 with over 44,000 views
Diagnosis and Treatment Ronny Allan
Number 5 with almost 44,000
Number 6 with almost 33,000 hits
Number 7 with almost 32,000 hits
tumour markers and hormone levels
Number 8 with over 30,000 hits
Number 8 with over 28,000 hits
Number 10 with over 28,000 hits
Number 11 with over 26,000 hits
Number 12 with over 26,000 hits
Number 13 with over 25,000 views
Number 14 with over 23,000 views
Number 15 with over 22,000 hits
Number 17 with over 21,000 hits
Number 16 with over 20,000 hits

Posts with 5000 to 20,000 views

Click on the title to read the remaining popular articles.  You can also just Google e.g. “Ronny Allan surgery”, “Ronny Allan chemotherapy” or “Ronny Allan Lanreotide”, etc etc etc, to find your subject of interest.

Neuroendocrine Cancer Nutrition Series Article 1 – Vitamin and Mineral ChallengesMore stats19,561
Aretha Franklin 1942-2018: Neuroendocrine CancerMore stats18,323
Serotonin – the NET effectMore stats18,240
The 5 E’s (of Carcinoid Syndrome)More stats17,931
Don’t believe the hype – Neuroendocrine Cancer Myths debunkedMore stats17,850
8 tips for conquering fear – Living with Neuroendocrine CancerMore stats17,786
All you need to know about Somatostatin Receptor PET/CT Scans for Neuroendocrine TumoursMore stats16,933
Neuroendocrine Tumours (NET) – benign vs malignantMore stats16,630
Carcinoid vs NeuroendocrineMore stats16,212
The A to Z of Neuroendocrine CancerMore stats15,741
Neuroendocrine Cancer – If you can see it, you can detect it!More stats14,867
Ignore this post about Neuroendocrine CancerMore stats14,202
Pancreatic Cancer vs Neuroendocrine Cancer of Pancreatic OriginMore stats14,175
Neuroendocrine Neoplasms – not as rare as you thinkMore stats13,874
Neuroendocrine Cancer Nutrition Series Part 4 – Amines: Food for Thought?More stats13,560
I look well but you should see my insidesMore stats12,612
I bet my flush beats yours?More stats12,061
Neuroendocrine Cancer – the diarrhea jigsawMore stats11,709
Neuroendocrine Cancer – it takes gutsMore stats11,653
Targeted Alpha-emitter Therapy (TAT) – the wave of the future in nuclear oncology/PRRT?More stats11,546
“You must be doing OK, you’ve not had chemotherapy”More stats11,541
Currently trending on RonnyAllan.NETMore stats11,339
Ever wonder what caused your Neuroendocrine Cancer?More stats11,315
Surgery for Neuroendocrine Neoplasms – to cut or not to cut?More stats11,087
Chemotherapy for Neuroendocrine CancerMore stats11,059
Neuroendocrine Cancer and Pancreatic Enzyme Replacement Therapy (PERT) – the Digested Version (Nutrition Series Article 5)More stats10,909
Neuroendocrine Cancer: Somatostatin Receptor (e.g. Ga68, Cu64) PET Scans – a game changer?More stats9,506
My tribute to Wilko Johnson #NeuroendocrineCancer – Rock and Roll Wilko!More stats9,482
Neuroendocrine Cancer is not a ‘type’ of another Cancer ….. PERIOD!More stats9,332
Neuroendocrine Cancer – don’t break my heart!More stats9,296
Somatostatin ReceptorsMore stats9,142
Irrfan KhanMore stats9,031
I’m still hereMore stats8,879
Treatment for Neuroendocrine Cancer – a summary for patientsMore stats8,576
Rosacea – the NET EffectMore stats8,500
Genetics and Neuroendocrine TumorsMore stats8,390
Shame on you!More stats8,278
Immunotherapy: Studies with Neuroendocrine NeoplasmsMore stats8,183
Neuroendocrine – don’t let it be a CrisisMore stats8,076
Neuroendocrine Cancer Nutrition Series Article 3 – Gut HealthMore stats7,984
Neuroendocrine…..the little suckers get everywhere!More stats7,960
Dear every cancer patient I ever took care of, I’m sorry. I didn’t get it.More stats7,834
In the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of lifeMore stats7,578
Phase 3 CABINET Clinical Trial – Cabozantinib for Advanced Neuroendocrine TumoursMore stats7,557
Chemo or not Chemo – that is the question More stats7,478
Telotristat Ethyl (XERMELO®) – an oral treatment for Carcinoid Syndrome Diarrhea not adequately controlled by Somatostatin AnaloguesMore stats7,478
Theranostics for Neuroendocrine Cancer – A Find and Destroy MissionMore stats7,431
Neuroendocrine Tumours: a spotlight on Pheochromocytoma and ParagangliomaMore stats7,376
Neuroendocrine Cancer: Troublesome ThyroidsMore stats7,334
The Invisible NET Patient Population More stats7,136
Update – Oncolytic Virus Trials for Neuroendocrine CancerMore stats7,050
Opinion: Neuroendocrine Cancer – Can it be cured?More stats6,978
At home with Lanreotide (….and Octreotide)More stats6,929
Neuroendocrine Cancer: Nodes, Nodules, Lesions (and false alarms!)More stats6,860
Somatostatin Analogues and delivery methods in the pipelineMore stats6,775
Neuroendocrine – what’s that?More stats6,664
Neuroendocrine Cancer: Fibrosis – an unsolved mystery?More stats6,625
Neuroendocrine Cancer Nutrition Series Part 6 – featuring the 2020 video series by Tara Whyand RDMore stats6,603
Palliative Care – it might just save your lifeMore stats6,538
Neuroendocrine Cancer: I CanMore stats6,510
Weight – the NET EffectMore stats6,464
A spotlight on Grade 3 (High grade) Neuroendocrine NeoplasmsMore stats6,453
Detective DoctorsMore stats6,420
Alcohol – the NET EffectMore stats6,384
Lanreotide – Four more yearsMore stats6,366
Coronavirus 19 (COVID-19): risks for cancer patientsMore stats6,303
Neuroendocrine Cancer: Diagnosing the UndiagnosedMore stats6,301
Repeat after me: Maria Menounos has Neuroendocrine CancerMore stats6,256
Histotripsy: A new technique which destroys cancer using soundwaves (now in Clinical Trials)More stats6,184
Diabetes – The NET EffectMore stats6,152
Don’t be underactive with your Thyroid surveillanceMore stats6,117
Olivia Williams – Neuroendocrine Cancer (VIPoma)More stats6,106
Diagnosis – I’m no longer in controlMore stats6,056
Cancer-related fatigue (CRF) – Neuroendocrine CancerMore stats6,008
Neuroendocrine Cancer: a needle in a haystack?More stats6,002
Neuroendocrine Cancer – my liver surgeryMore stats5,862
Neuroendocrine Cancer – a difficult jigsawMore stats5,781
Detectnet™ (64Cu-DOTATATE) – an expansion of the Somatostatin Receptor PET Imaging for Neuroendocrine CancerMore stats5,650
Neuroendocrine Cancer – I didn’t hear it comingMore stats5,631
Clinical Trials of PV-10 (Rose Bengal) for the treatment of Neuroendocrine Tumours (NET)More stats5,494
Colonoscopy ComedyMore stats5,355
Things not to say to someone with cancerMore stats5,328
Neuroendocrine Cancer – surveillance and follow upMore stats5,322
Proton Pump Inhibitors (…..and H2 Blockers) the NET EffectMore stats5,225
Categories, tissues and primary sites – the lost awareness of Neuroendocrine CancerMore stats5,124
Neuroendocrine Cancer – not average, just meanMore stats5,103
A spotlight on Multiple Endocrine Neoplasia (MEN)More stats5,021

Didn’t find what you’re looking for?  Google “Ronny Allan – insert your own term (e.g. surgery, chemotherapy, etc etc etc).  i.e. “Ronny Allan Surgery” and you will get any post tagged with the term “Surgery”

 
 

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. 

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.   

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

General Clinical Trials Disclaimer

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided in the clinical trials document. It’s very important to check the trial inclusion and exclusion criteria before making any contact.  If you need questions, the articles here is very useful Questions to Ask About Clinical Trials | Cancer.Net

The inclusion of any trial within this blog should not be taken as a recommendation by Ronny Allan. 

 
 
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Thanks for reading.

Ronny

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patients included

Please Share this post for Neuroendocrine Cancer awareness and to help another patient

 
 
 

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One of the many observations I make in my private Neuroendocrine Cancer Facebook group is the misunderstandings caused by the use of non-standard terminology combined

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Lanreotide: Ipsen injection devices vs generic injection devices

Lanreotide: Ipsen injection devices vs generic injection devices

Whenever I get a chance to talk to a pharma involved in somatostatin analogue injection devices, I tell them one very important thing …… “To

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Cancer doesn’t take holidays (but I do)

Glen Etive Scotland in 2018 After diagnosis in July 2010, with the exception of a planned holiday to Turkey prior to my ‘big surgery’, holidays

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A cup of tea


I would also mention those who contributed to my “Tea Fund” which resides on PayPal.  You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one.  Clearly, if you have a PayPal account, the process is much simpler 

Through your generosity, I am able to keep my sites running and provide various services for you.  I have some ideas for 2023 but they are not detailed enough to make announcements yet. 

This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)

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