The Journey to the Hospital on 8th November didn’t go smoothly!
I had to be admitted to hospital for my surgery on 8th Nov 2010, but the surgery was not taking place until 9th November. The technical reason for that is explained further below.
Not a good start, 13 years ago today, Chris was driving me to the hospital for my first surgery, the “my big surgery” as I call it. It was “debulking” i.e. get as much as possible. In the end, the liver was left for another day.
Surgical Prep 8th November
As I said above, I had to be admitted 24 hours before the surgery, this was mainly to start the peri-operative octreotide infusion to de-risk the possibility of ‘hormonal crisis‘ which is a well-known risk with symptomatic NET patients with carcinoid syndrome. I had carcinoid syndrome at diagnosis, and it wasn’t fully under control with daily octreotide. It’s now just a waiting game, Chris was with me for a while, and I have a TV!
Shortly after my evening meal, a nurse arrived to hook me up to octreotide on drip. I had already experienced this prior to a liver embolization a month previously. But it still amazed me how much octreotide was in one of those cylinders (£££££).
The other special thing about this surgery was that I was going to be away from work for so long, I had to make my condition public. Prior to that, only a select few had the knowledge. That was a tricky one for me.
I had no perioperative issues during all 3 of my surgeries. I even had a non-NET surgery 1 year after diagnosis without any perioperative octreotide, but I was not showing any signs of the carcinoid syndrome I clearly had before and at diagnosis, so felt safe. There has always been controversy about who needs perioperative octreotide for surgery, i.e. it is for all NET types, is it for all syndromes, is it for all stages, for all grades etc etc.
Fast forward 10 years, I was surprised to see the status quo on this challenged and it was even going further than I had imagined. And it was coming from a source which I have always trusted to be first class. Dr Rodney Pommier now suggests that perioperative octreotide does not make any difference and should be discontinued adding that it is “not the correct treatment”. He also stated, “we need a new model for carcinoid crisis” (hopefully including a name that does not have the ancient misnomer word “carcinoid” in it).
Read about this very interesting intervention into something that has been in accepted practice since the 1960s. Click here or on the picture to read and hear more.
Read how that went – in two parts. Click here
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted. Please check any references attached.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
Thanks for reading.
Blog Facebook. Like this page please.
Personal Facebook. Like this page please.
Awareness Facebook Like this page please.
Follow me on X (formerly twitter)
Check out my online presentations
Check out my WEGO Health Awards
Before you read this This information is designed to help you understand how vitamins and minerals work in the body and how certain NET-related factors
Before you read thisThis information is designed to help you understand how vitamins and minerals work in the body and how certain NET-related factors might
Summary of July 2026 on RonnyAllan.NET July was similar to the other months of this year but views down on the previous two months due
I finally made 16 years since I was diagnosed on 26th July 2010. A milestone I was not certain at the time I would reach. However, as things progressed, as treatment was administered, and as I got used to living with Neuroendocrine Cancer, I eventually became more confident this was a possibility with the help […]
Intro Cushing’s syndrome is one of the most challenging hormonal complications seen in people with neuroendocrine neoplasms (NENs). It can be subtle, severe, or even
Today, 14th July 2026, I can confirm the 3 million views milestone has been reached. MASSIVE THANKS to you guys for reading and sharing.
Before you read thisThis information is designed to help you understand how vitamins work in the body and how certain NET-related factors might affect
Disclaimer: This Spotlight provides general educational information about Iron. It is not a substitute for medical advice. Individual needs vary, particularly for those with conditions
Headline – half yearly point bonus edition Summary of June 2026 on RonnyAllan.NET June was similar to the other months of this year but slightly down on
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)
Subscribe to get the latest posts sent to your email.
