11Jan 2021 by Ronny Allan 2 Comments

Translate

Subscribe to Blog via Email

Join 14.2K other subscribers

Ronny Allan

Award winning Neuroendocrine Cancer Patient Advocate. Diagnosed with Metastatic Neuroendocrine Cancer in 2010.

Today – the following figure is the total number of views of my blog! Can you help me get to 3 million?

2,250,171 views

PLEASE SHARE THIS POST

I realise some of you are busy but if you wanted a quick catch up and summary of what’s currently relevant on my site, you can bookmark this article and refer to it time and time again. It will automatically update the top 10 list below which are the most read posts in the previous 48 hours on my site.

To read an article just click on the title in the box below

These views will have come from various sources of reading including my Facebook pages, Twitter, Pinterest, WordPress, newsletters and in my private group.

I hope many of you will find this new tool useful.

Thanks as usual for your phenomenal support.

Ronny

To read any article, just click on the title below

Please browse at your leisure

Thanks for reading.

Ronny

Personal Facebook. Like this page please.
Blog Facebook. Like this page please.
Awareness Facebook Like this page please.

Disclaimer

My Diagnosis and Treatment History

Follow me on twitter

Check out my online presentations

Check out my WEGO Health Awards

Check out my Glossary of Terms – click here

Please Share this post for Neuroendocrine Cancer awareness and to help another patient

Clinical Trial – Lutathera NETTER-2 Important Update

September 25, 2023 No Comments

UPDATE – Sep 25th, 2023 – Novartis radioligand therapy Lutathera® demonstrated statistically significant and clinically meaningful progression-free survival in first line advanced gastroenteropancreatic neuroendocrine tumors

Lanreotide: Ipsen injection devices vs generic injection devices

September 10, 2023 No Comments

Whenever I get a chance to talk to a pharma involved in somatostatin analogue injection devices, I tell them one very important thing …… “To

Cancer doesn’t take holidays (but I do)

September 6, 2023 17 Comments

Glen Etive Scotland in 2018 After diagnosis in July 2010, with the exception of a planned holiday to Turkey prior to my ‘big surgery’, holidays

Update from Ronny Allan: No evidence of progressive disease at any site

September 5, 2023 10 Comments

Update August 2023. Latest CT surveillance scan reports “No evidence of progressive disease at any site”. Very pleased! With incurable but treatable cancers such as

Exercise is Medicine

September 4, 2023 12 Comments

Exercise is medicine. Clearly I need to be careful with that statement given my aversion for cancer myths. However, those who know me will totally

Jimmy Buffett 1946-2023 – Neuroendocrine Carcinoma (Merkel Cell Carcinoma)

September 3, 2023 No Comments

US singer-songwriter Jimmy Buffett, best known for his 1970’s hit Margaritaville, has died aged 76. “Jimmy passed away peacefully on the night of September 1

Passive patient or active advocate?

September 3, 2023 4 Comments

I’ve been researching Neuroendocrine Cancer for some time now. Why do I do this? Whilst I have a great medical team, I’d also like to

Childhood Cancer Awareness Month – Neuroendocrine Cancer (featuring Elizabeth)

September 2, 2023 5 Comments

September is Childhood Cancer Awareness Month! The newspapers and social media will no doubt be featuring many childhood cancer articles. You may not see one

A review of August 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer

August 31, 2023 No Comments

On my website RonnyAllan.NET, August was as quiet as July but in the second half, I accelerated publication of some posts. The month was also

A cup of tea

I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler

Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.

This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)

2 thoughts on “Currently trending on RonnyAllan.NET”

Finn Harp

Ronny-

Immunotherapy on the site?

I was diagnosed with stage 4 pancreatic NET mets to liver in Jan 2019. After a few weeks with a 3-6 mo survival diagnosis some additional tumor analysis found they were Hi-MSI tumors -eligible to be treated with recently approved (for all Hi MSI solid tumors) immunotherapy.

I had great results being treated with ipilumumab + nivolumab for 24 mos. Tumors shrunk to about 10% of the original mass and then were stable for a couple more months. Once the tumors started growing (slowly) again, I came off the original treatment and have been on investigational immunotherapy since. First trail was successful for 3-6 mos. Now I’m onto the 2nd trial and feeling better again.

With an FDA approved immunotherapy for Hi-MSI NETs, suggest it would be useful to have info about immunotherapy on your site. I was treated at MD Anderson in Houston.

The team at MD Anderson almost immediately did tumor analysis that flagged the biomarkers which showed immunotherapy would likely be effective. Suspect not all patients have that good fortune.

Let me know if I can help.

-P

Loading...

July 27, 2021 at 11:29
- Ronny Allan
  
  What is your grade and differentation?
  
  The immunotherapy experience with Neuroendocrine Neoplasms is not great, there’s always outliers of course.
  
  Loading...
  
  July 27, 2021 at 12:59