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Ronny Allan

Ronny Allan is a 3 x award-winning accredited patient leader advocating internationally for Neuroendocrine Cancer and all other cancer patients generally. Check out his Social Media accounts including Facebook, BlueSky, WhatsApp, Instagram and and X.

UPDATE 13TH NOVEMBER 2022 – WORLD NEUROENDOCRINE CANCER DAY MESSAGE FROM OLIVIA

For those that don’t know, Olivia has a part in the new series of “The Crown” commencing November 2022 on Netflix.  She took the opportunity during an interview on US television to mention World Neuroendocrine Cancer Day (the name of one my my Facebook pages).

Watch that here.  Fast forward to minute 4:20 and she emphasises the point that it was also the cancer Steve Jobs and Aretha had)

https://youtu.be/BskIspQVy0w?t=261

Please note this is not a recommendation to watch this fictional series or take out a Netflix subscription. 

Well known UK actress Olivia Williams has been diagnosed with a functioning pancreatic NET called a VIPoma. She played Bruce Willis’ wife in the blockbuster Sixth Sense in 1999. She is also known for her roles in TV dramas such as ITV’s The Halcyon and American science fiction thriller series Counterpart.  And she was on the set in California when her biopsy result came though confirming the pNET.  The doctors, who I believe were from Cedars Sinai even said “It’s not pancreatic cancer, it might be a neuroendocrine tumour”. She finally got surgery in Kings College London.  Read the Vogue article here.  So glad she finally got it sorted after 4 years (great story inside).  

However, she was shortly after asked to be an ambassador for Pancreatic Cancer UK. She said she was happy to help but pointed out she wasn’t really famous enough to raise lots of money. They replied that she wasn’t being asked because she was famous, she was being asked because there are so few survivors”.  Well that’s slightly misleading because they were clearly inferring ‘Pancreatic Cancer’. #aaghhh
 
Another frustrating thing about the 3 articles I read, they all refer to Pancreatic Cancer – UK Daily Mail ran a full section on the dangers of Pancreatic Cancer which is totally misleading to the actual cancer Olivia had and is therefore misguided advice. And as usual, Steve Jobs and Aretha Franklin get hooked in to the story inferring they too had Pancreatic Cancer.  OK Neuroendocrine is mentioned in the article but the inference is that it’s a type of Pancreatic Cancer sending the wrong messages on symptoms, therapy and prognostics, and of course many people only read the headline.  Read about the differences by clicking here.
 

Since writing this, well done to Neuroendocrine Cancer UK, who have managed to persuade Olivia to take part in their awareness and she did their “2point6 challenge” – well done guys!  Click here to see Olivia’s video

Good to see her get on with her life and she secured a part as Camilla Parker Bowles in the hit series The Crown, not yet screened but due out later this year.  Click the picture to see the news report. 

credit Getty Images

However, this is a confusing and rather unhelpful awareness for Neuroendocrine Cancer. In her defence, she’s representing Pancreatic Cancer as one of their Ambassadors, so it would have been awkward to plug a “different cancer”. She was there to discuss Pancreatic Cancer UKs #TransformLivesPrescribe campaign, helping to get pancreatic enzyme replacement therapy (PERT) for Pancreatic Cancer patients, a very worthy cause. 

But the ITV’s banner below is yet another misleading description of a famous person with Neuroendocrine Cancer.

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