One of the key aims of my blog is to create more awareness of Neuroendocrine Cancer, its peculiarities, its effects, its ability to deceive, its ability to kill if left undetected and/or untreated; and its impact on Quality of Life (QoL). There are millions of people out there doing similar with thousands of other conditions. That means even to stand out a little, messages must be compelling, must attract attention; and must catch people’s interest. Unfortunately, many campaigns I see are outdated, based on flawed themes from the 1980s and as a consequence, awareness of Neuroendocrine Cancer stands still. Frustrating to me is that many patients complain we don’t get enought awareness and then post a 1980s outdate campaign! Sometimes, it’s about quality not quanitity……..
In the last 9 years, I’ve generated a few ‘different’ awareness campaigns, some of which have been more successful than others and I learn from this. Fortunately, I’ve had significant help from YOU because if you did not share my posts and blogs, they would not have the potential reach they currently do and would not, therefore, attract the new audiences I’m looking for (….and finding!). The same applies to Facebook, X (formerly twitter) and other parts of the social media metaverse. I thank you all for the help to date. However, the job is far from finished!
My main campaigns are listed here so please help yourself to the ones you like and feel free to support or sponsor. Please note there are social media sharing buttons at the bottom of each post – or just simple cut and paste as required.
The anatomy of cancer works against us so we need to really drive this message home. We lose a lot of publicity, resources, supporters and potential funding because of this misunderstanding. This post should be framed and put on the desks of every person recording a cancer. Click here to read more.
This is a reverse psychology message which is designed to attract attention – and it does! It is currently one of the most tweeted posts in the history of Neuroendocrine Cancer awareness. If you’re on twitter, please retweet the original post (quoting it in a new post is also great but please also retweet the original). The tweet can be found by clicking here. It’s also a great awareness post for any type of social media so please share as it gives a really simple and yet compelling awareness message about the danger of Neuroendocrine Cancer and ignoring symptoms, including after diagnosis. Click here then share.
This is a powerful message which lets people know what effects the consequences of Neuroendocrine Cancer and its treatment have on people’s lives. It’s not a pity party – I don’t do those (as you well know).
I also emphasise that it’s not all about diagnostic difficulties (as important as that might be), more focus needs to be placed on LIVING with Neuroendocrine Cancer given that it is a highly prevalent cancer, and no longer rare.
The diagnostic angle was relevant 20 years ago, but the focus needs to become much wider thus why the community needs to shift from the ‘same old same old’ to a ‘different new’. This post has attracted much interest from new audiences in the wider healthcare world. Read and share it by clicking here
Neuroendocrine Cancer – ssh! Can you hear it? This is the ‘silent’ theme and attracts a lot of support. This really drives home the devious nature of Neuroendocrine Cancer, the fact that it can be a very silent until it’s too late and the difficulties that it presents with accurate diagnoses and subsequent ongoing monitoring. The post can be found by clicking here
Neuroendocrine Cancer Syndromes – Early Signs of a Late Diagnosis
This is an awareness message to emphasize that there are a number of different syndromes involved in NETs in different parts of the body and that terminology and understanding is important to get the awareness messages right. Click here.
This post has had the largest number of 5 star ratings input by readers indicating support for my awareness strategy. Don’t get me wrong, 10 Nov is special but the other 364 days also present awareness opportunities. I use ‘World Neuroendocrie Cancer Day’ because ‘NET Cancer’ is pretty much wrong for two reasons, firstly there’s no such term as “NET Cancer” and secondly the decode “Neuroendocrine Tumour Cancer” is not only excluding Neuroendocrine Carcinomas from awareness but it’s also very bad grammar. You can read this blog by clicking here.
This awareness message also emphasizes the anatomy of Neuroendocrine Cancer and the importance of the correct terminology in order to get the optimum and accurate awareness messages over. I’m using the word ‘sites’ as a take on ‘sights’ – someone picked me up for spelling last time I posted! Click here to read.
Very powerful message, scary but designed for external audiences. My most read article with over 60,000 views since published. This post should be framed and put on the desk of every general practitioner in the world. Click here to read
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted. Please check any references attached.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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Discover more from Ronny Allan – Living with Neuroendocrine Cancer Subscribe to get the latest posts sent to your email. Type your email… Subscribe
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