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November 28, 2025
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Ronny Allan
Ronny Allan is a 3 x award-winning accredited patient leader advocating internationally for Neuroendocrine Cancer and all other cancer patients generally. Check out his Social Media accounts including Facebook, BlueSky, WhatsApp, Instagram and and X.
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I’m constantly fighting algorithms! Facebook is the worst, apparently only 10% of followers will get a notification of a new post on my pages. 10% !!!
Because I am a blogger for a health condition, they put me amongst businesses. Clearly they want advertising revenue from business, I get that, Facebook has huge overheads. But I am here helping people and not reaching my community (unless I pay of course). However, if you are following my Facebook pages, add them to your favourites and you will help beat the algorithms.
It is essentially the same on WordPress (my blog tool) and to a certain extent on X (formerly twitter) – even Google obstructs my quest for more views. They all want you have pay for advertising or take out a verified account (££$$).
I tend to know what posts should be read more but that often does not happen. These 10 posts here should be trending more, so I wanted you to have a second chance of seeing and reading them. So here goes ……
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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Bone metastases in Neuroendocrine Tumours (NET)
November 17, 2025
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Bone metastases in Neuroendocrine Tumours (NET) Many of you will know that I am a stage IV small intestine NET and I have one bone
MP0712 (212Pb x DLL3), Radio-DARPin – DLL3 Radioligand Therapy Trial for Neuroendocrine Neoplasms
November 16, 2025
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What is Radioligand Therapy? When you browse the internet, you may see the term “Radioligand Therapy (RLT)” and wondered what it was. There’s a simple
Piss off Cancer, it’s been 15 years since my “big surgery”
November 9, 2025
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D Day I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea
The Dethroning of Neuroendocrine Neoplasms as an Orphan Disease: US Incidence, Prevalence, and Survival in the 21st Century
November 8, 2025
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USA – Prevalence of Neuroendocrine Neoplasms (NENs) breaches the Orphan Disease threshold for the first time (officially) The latest US SEER figures confirm that staggering
Reframing Neuroendocrine Neoplasms Beyond “Rare”
November 7, 2025
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Reframing Neuroendocrine Neoplasms: Beyond “Rare” Neuroendocrine neoplasms (NENs) have outgrown the “rare disease” label. e.g. Across the U.S., UK, and Australia, they now rank among
Every stripe is lost awareness
November 6, 2025
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Sincer 2015, my message has not changed. My message continues to be justified because since then, many important voices in the NEN community have repeated
Ronny Allan – a review of my blog activity September and October 2025
November 1, 2025
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Here is the monthly summary of September and October 2025 on RonnyAllan.NET – Every share helps someone understand or even work towards a diagnosis,
Neuroendocrine Cancer? – Where to find a NET Centre/Specialist Worldwide
October 31, 2025
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Scroll down to check out the doctors list just below Scroll down to also see information on “NET Aware” Dietitians. Important note The accuracy of
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Discover more from Ronny Allan - Living with Neuroendocrine Cancer
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