This is a great catchphrase from Neuroendocrine Cancer UK. It is partly based on the realisation that Neuroendocrine Cancer is no longer rare.  OK, that has been the case for some years but the recent data from NHS England cements this patently obvious truth. In England, it is now the 10th most prevalent cancer with a continually rising incidence – that has already seen 371% increase since 1995.  Neuroendocrine Cancer UK is possibly the most progressive organisation within the INCA national collective, although I am seeing glimmers of change in some others.  Unfortunately, many North American organizations/advocates appear to be going backward on this issue which I find bizarre. Certain European countries are also lagging. 

The phrase “Ask More and “Assume Less” is a great punchline and fits many of the experiences we hear about on a daily basis. I’m a big believer in “asking more” as many of you will know.  My second most-read post is the comprehensive 10 Questions which has been read almost 50,000 times (as of Nov 2022). 

Assume less is also very important and applies to both patients and healthcare professionals.   It must not be assumed that all Neuroendocrine Tumours (NETs) are benign and don’t need attention and patients must not assume that the doctor they initially see knows about NETs – thus why seeing a specialist NET team is important before any big decisions are made.  The most comprehensive list of NET Specialists can be found by clicking here.