I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea what the outcome would be. What I did know at the time, given the final staging and grading, in addition to the other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying.
Without intervention I may not be here now to tell you this tale and who knows what would be listed on my death certificate. It’s amazing to think something that would eventually kill me without intervention, didn’t have a much grander announcement than the one presented to me in 2010 (or had I been paying more attention, in 2008 or 2009). I will never know if a much grander announcement would have happened because following my chance diagnosis, I was ‘patched up’ and thankful to still be here today.
My “big surgery” took place on 9th November 2010. I say “big surgery” because I had two other surgeries following it, one of which could also be categorised as major surgery.
Truthfully speaking, I did not expect to be here 13 years later, or at least that was my thinking at the time and for some years after that. The fact that I am must be related to the early intervention and radical surgery administered over the period 2010-2012, and the constant surveillance since. As a metastatic small intestine NET, debulking surgery is thought to be prognostically advantageous for many.
Accessing a specialist team is important early on, preferably before surgery as there are certain vagaries with Neuroendocrine Tumours (NET) which should at least be considered.
I was admitted on 8th November 2010 for what my surgeon called “an octreotide soak”. That day was not incident free – you can read about that day here. Or click on the picture below.
I’ve written extensively about this but you can read it here:
Check out my detailed clinical history from diagnosis on 26th July 2010:
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
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Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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