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The surgery on 9 Nov 2010 had lasted 9 hours but according to my surgeon Mr Neil Pearce (on the left on the picture below), I tolerated it well.  My first week was quite tough and I outlined how this went in my blog ‘patient experience’ part 1.  If you’ve not read it yet, please click on this link before reading any further.

By this stage of my stay, I’m now minus most of the temporary tubes attached to my body, a good sign of recovery. The one which seemed to offer me the greatest freedom when removed was the urine catheter. It doubled my speed down the hospital corridor during my daily exercises.  It was also so much easier to get to the toilet, a much-frequented area at the time 😊

Surprisingly, the comfortable and very adjustable hospital bed was starting not to seem so comfortable, and I was really looking forward to my own bed back home.  Moreover, daytime TV was starting to become repetitive and boring!

However …… I had a pain right in the middle of my chest and it gradually became intolerable.  To cut a long story short, a CT scan confirmed the presence of a postoperative seroma (a collection of fluid), and a minimally invasive aspiration was ordered. The radiologist covering my post-diagnostic scans was also an ‘Interventional Radiologist’ so was able to carry out this procedure guided by CT scan.  There was a long list of scary risks explained by Dr Brian Stedman (on the right in the picture below) and I was put more at ease when he told me he had carried out this procedure more than anyone else in the south of England.  It was amazing to watch, and it reaffirmed the amazing skills I knew this guy had.  The liquid was successfully removed (pale yellow/beige) and it later tested negative.

As a consequence of this issue plus an elevated white blood count (indicating a possible infection), I was unable to go home as planned.  However, I was in exactly the right place to continue my recovery.  I had already been ‘declared’ fit to go home by the Physio, so used the additional time to improve my mobility and strength.  The antibiotics dispensed for the suspected infection played havoc with my bowels exacerbating the post-operative problems already being encountered.

On 26 Nov 2010, I was released after 19 days of 24-hour care, doctors and nurses ‘on tap’.   I’ve read it’s normal for patients to feel insecure when leaving the hospital after very close support from trained medical staff.  Although I was to be well looked after by close family, I still felt a little exposed as Chris drove me away from the hospital complete with a plethora of various drugs I would need to continue my recuperation at home.  So, feeling slightly exposed, quite fragile and vulnerable, off we went.  The next few weeks were also tough but that’s another story for another day.  However, it was good to be home and that’s part of the healing process. 

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Surgeon Mr Neil Pearce and Interventional Radiologist Dr Brian Stedman

Looking back, one of the most remarkable things is the ability to adapt to a new normal.  I entered the hospital at 11st 7lbs in weight (161lbs or 73kg) and left at 10st 7lbs (147lbs or 66.7kg). Even after a few weeks, people said I looked unwell.  Curiously I look really well today at the same weight I was when leaving the hospital.

I actually did wake up on World Neuroendocrine Cancer Day!

I had no idea about such things back then, but having woke up after midnight on 10th November 2010, this is not a fancy blog gimmick headline, this is fact!  Click here to read or click on the picture below. 

World Neuroendocrine Cancer Day Ronny Allan
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Follow on reads:

18 days in November 2010 –  click here

48 hours 8th – 10th November 2010click here

Small Intestine NET primary surgery Part 1 – click here

Read about my Liver surgery which took place some 4 months after this one. Click here – Liver Surgery

Read about my lymph node surgery which took place in 2012. Click here.

Weight.  A constant challenge in the first few years and often beyond. Click here

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. 

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted.  Please check any references attached.    

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

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Ronny

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15 years of Christmas!

15 Christmas celebrations since diagnosis. A thankful statement My Facebook memories today are full of Christmas activities including my first Christmas following diagnosis of advanced

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I would also mention those who contributed to my “Tea Fund” which resides on PayPal.  You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one.  Clearly, if you have a PayPal account, the process is much simpler 

Through your generosity, I am able to keep my sites running and provide various services for you.  I have some ideas for 2023 but they are not detailed enough to make announcements yet. 

This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)


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