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You’ve reached the website and blog of Ronny Allan. Glad you found this page, as there is a mountain of information, all carefully researched where applicable. This post is a list of your favourite posts as voted by you, the reader. How do you vote? Simple, you read posts that interest you, that pushes them up the league table over time. If you really like a particular post, you can easily share it too.
If your favourite post is not listed, just let me know, I’ll market it on your behalf.
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My home page explaining who I am in more detail can be found here:




Most read posts (over 20,000 views)
Posts listed individually below have viewing counts over 20,000, just click the blue link below to read. Please feel free to share anything you want.
- Neuroendocrine Cancer – normally slow but always sneaky – an awareness post from Ronny Allan – 67,766
- Neuroendocrine Cancer? – Where to find a NET Centre/Specialist Worldwide – 64,056
- The Classification, Grading and Staging of Neuroendocrine Neoplasms (incorporating WHO 2022 classification changes) – 62,033
- The Syndromes of Neuroendocrine Cancer – Early Signs of a Late Diagnosis – 51,665
- Ronny Allan: My Diagnosis and Treatment – Neuroendocrine Cancer – 46,412
- The Human Anatomy of Neuroendocrine Cancer – 38,132
- Steve Jobs – the most famous Neuroendocrine Cancer Ambassador we NEVER had – 37,256
- Neuroendocrine Cancer – tumour markers and hormone levels – 34,582
- Ronny Allan’s Premier League of Blog Posts – 31,623
- Neuroendocrine Cancer: My experience with Lanreotide Ipsen – 31,530
- Somatostatin Analogues for Neuroendocrine Cancer: Lanreotide and Octreotide – 31,367
- Metastatic Neuroendocrine Tumours – Incurable but treatable – 29,642
- All you need to know about Peptide Receptor Radionuclide Therapy (PRRT) – 29,459
- Neuroendocrine Cancer Hormonal Syndromes – a witch’s brew – 26,924
- Paul Hunter Tribute – Snooker champion and Neuroendocrine Cancer patient – 26,498
- Neuroendocrine Cancer Nutrition Series Article 2 – Gastrointestinal Malabsorption – 25,485
- Don’t believe the hype – Neuroendocrine Cancer Myths debunked – 23,935
- Neuroendocrine Cancer Nutrition Series Article 1 – Vitamin and Mineral Challenges – 22,421
- Neuroendocrine Cancer – Horrible Hormones – 22,327
- Serotonin – the NET effect – 21,255
- Ronny Allan’s The A to Z of Neuroendocrine Cancer – 21,166
- What is being read most in the last 7 days – 21,084
- Aretha Franklin 1942-2018: Neuroendocrine Cancer – 20,932
- The 5 E’s (of Carcinoid Syndrome) – 20,298
READ EVERYTHING – CLICK HERE
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Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided in the clinical trials document. It’s very important to check the trial inclusion and exclusion criteria before making any contact. If you need questions, the articles here is very useful Questions to Ask About Clinical Trials | Cancer.Net
The inclusion of any trial within this blog should not be taken as a recommendation by Ronny Allan.
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted. Please check any references attached.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.



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Latest Posts on RonnyAllan.NET
- Phase 1/2 Trial Evaluating CRN09682 for the Treatment of Neuroendocrine Tumors and Other Somatostatin Receptor 2-Expressing Tumors
Crinetics Announces First Patient Dosed in Phase 1/2 Trial Evaluating CRN09682 for the Treatment of Neuroendocrine Tumours and Other Somatostatin Receptor 2-Expressing Tumours Read the news – click here Clinical Trial Document – click here Limited to US (6 locations) (so far). CRN09682, a first‑in‑class non‑peptide drug conjugate (NDC) developed… Read more: Phase 1/2 Trial Evaluating CRN09682 for the Treatment of Neuroendocrine Tumors and Other Somatostatin Receptor 2-Expressing Tumors - Ronny Allan – a review of my blog activity December 2025
Here is the monthly summary of December 2025 on RonnyAllan.NET – Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments. December is normally a quiet month, often the quietist month of the year. However, this year, it was the best figures… Read more: Ronny Allan – a review of my blog activity December 2025 - A review of 2025 on RonnyAllan.NET
Summary of 2025 from Ronny It was a good year for my advocacy work but a difficult year personally which had some impact on my advocacy work. I had to spend quite a bit of time looking after my brother’s affairs when he was diagnosed with dementia and is now… Read more: A review of 2025 on RonnyAllan.NET - Piss off cancer – 15 years of Christmas!
15 Christmas celebrations since diagnosis. A thankful statement My Facebook memories today are full of Christmas activities including my first Christmas following diagnosis of advanced Neuroendocrine Cancer. I had been out of hospital for only 4 weeks following major surgery in 2010. I remember the whole of my own family… Read more: Piss off cancer – 15 years of Christmas! - The next generation PET/CT is coming soon. The Omni 128cm Total Body PET – Small Australian trial at Peter Mac
A Global first for NET. Omni 128cm Total Body PET at the Peter MacCallum Cancer Centre in Melbourne Australia. According to Professor Michael Hofman, they have been using the camera for a couple weeks and it is exceeding their expectations. They’re running a short trial comparing results against regular PETs. … Read more: The next generation PET/CT is coming soon. The Omni 128cm Total Body PET – Small Australian trial at Peter Mac - Neuroendocrine Cancer: I hadn’t heard of it until I was diagnosed with it
My diagnosis came with many strange words including, “carcinoid” and “neuroendocrine” ……… can you spell that please, I said to the doctor. I had a low ki67 figure from a tissue sample taken percutaneously from my liver, it seemed pretty good that I was only 5 in a range of… Read more: Neuroendocrine Cancer: I hadn’t heard of it until I was diagnosed with it - Ronny Allan’s ‘PoNETry’ © – An Ode to Invisible Illness
Ronny Allan’s ‘PoNETry’ © series can be shared with poetry credit to: RonnyAllan.NET Thanks for reading Ronny I also have one about Lanreotide (or “butt darts” in general) – click here Click here and answer all questions to join my private Facebook group Thanks for reading. Ronny Blog Facebook. Like… Read more: Ronny Allan’s ‘PoNETry’ © – An Ode to Invisible Illness - Neuroendocrine Tumours (NET) – hiding in plain sight – an awareness post from Ronny Allan
When I was diagnosed, I didn’t even feel ill. It was therefore a bit of a shock being told I had metastatic cancer, advanced enough to kill me without treatment. It was hiding But it did make me think back to some minor irritants, or to be accurate what I thought… Read more: Neuroendocrine Tumours (NET) – hiding in plain sight – an awareness post from Ronny Allan - Ronny Allan – just a wee Scottish guy with a computer
I was assessing performance of the awareness period in November 2025 on Facebook and was astonished to find the size of my reach on that platform. It appears I reached well over half a million people (572,700 to be exact) when adding up the performance of my 3 public Facebook… Read more: Ronny Allan – just a wee Scottish guy with a computer - Ronny Allan – a review of my blog activity November 2025
Here is the monthly summary of November 2025 on RonnyAllan.NET – Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments. November is not a good month for me because I tend to think back to the worrying times when I had… Read more: Ronny Allan – a review of my blog activity November 2025

Hello I’m trying to find the post that’s in your Instagram about benign liver. I can’t seem to find it? Thanks!
sure – when I post Instagram, it is also on Facebook – you can find that here. https://www.facebook.com/NeuroendocrineCancer.RonnyAllan/posts/1088631289734442
or go straight to the post here https://ronnyallan.net/2022/10/23/benign-liver-lesions-something-or-nothing/
Just shout if you need more
I’m tech-challenged; how do i get on your blog… I suspect that’s the best place for me to start. I am so confused and feel hearing others talk about issues will help at least get going in a positive direction for appropriate questions
You’re commenting on it now. You need to sign up to receive new posts
If you’re on Facebook, I can also help you there
Thanks Ronnie it’s a Very impressive list. I will take my time and look again to see if I have missed any. Dorothy from Australia
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Hi ronny
I am Arun Khanna from India and have been recently diagnosed with Liver metastases after 4.5 years of my right hemi cholectomy for removal of neuroendocrine tumor in my terminal ileum.
Is there a way I can speak with you to get some advice and direction?
Regards
+919810020543
Arunkkhanna@gmail.com
Hi Arun, the best way is on facebook messenger – here http://m.me/NETCancerBlog