One of the most interesting statistics in my blog app is the total number of views recorded each day. It even breaks the total down into which posts were most viewed and which countries the viewers were from (but please note it does not identify the name or any other details of viewers). I’m always very pleased to have readers from overseas locations – I hope they enjoy reading my blog and find it useful. To date, these include readers from USA, Australia, Canada, New Zealand, Barbados, Belize, France, Germany, Switzerland, Belgium, Netherlands, Luxembourg, Portugal, Austria, UAE, Bahrain, Philippines, Nigeria, Kenya, Croatia, Ireland, Sweden, Italy, Japan, Czech Republic.
Neuroendocrine Cancer is not unique to UK, it’s an International disease. If you research, you will find Neuroendocrine Support groups in most countries.
There are also international medical groupings who collaborate with each other and with industry to discover new treatments and suggest new standards for care. In the UK (and Ireland) there is the UK and Ireland Neuroendocrine Tumour Society (UKI NETS and they will liaise closely with their counterparts in the European Neuroendocrine Tumor Society (ENETS). I find the technical documentation from these organisations quite useful.
Our friends in USA have the biggest organisations and I very much like the Carcinoid Cancer Foundation http://www.carcinoid.org/ which I use regularly. They just shared a very good video today on Twitter which I’m embedding here, I hope you can find the time to watch it? http://www.youtube.com/watch?v=9U6q78a1xaQ
At the support level, the International Neuroendocrine Cancer Alliance is the global voice in support of neuroendocrine cancer patients http://netcancerday.org/ I mentioned above that there are support groups from many countries – you can see a list here http://netcancerday.org/about/world-net-community-directory. Every year on NET Cancer day – 10 Nov, their voice gets louder in support of Neuroendocrine patients. Make a note in your calendar – I’ll be having a coffee and cake morning at home and I might even invite some of you ……. 🙂
You have a worldwide following because you tell us what you’ve been experiencing and what you are reading about. This helps all of us in unique ways. Since we all have our personal differences with our “NEUROENDOCRINE CANCERS”. Some with the Syndrome issues. This BLOG of yours puts us into a WORLDWIDE FAMILY of similarities. We all thank you for taking your time to inform us and even Liston to us. And then there are times you actually answer some similar Neuroendocrine questions.
Thank you Thank You ! For all you have done and will do for all of us that follow and listen.
Thanks Ronny Allan.
Vicki Kubal from Naperville Illinois 🇺🇸 USA