This story is about my friend Kirsty. She has metastatic Pheochromocytoma, a type of Neuroendocrine Tumour (NET) of the adrenal glands – (read more here) She has an amazing blog which is not just for Pheochromocytomas or just for Neuroendocrine Cancer patients and supporters. The challenges she has faced, and still facing, are very similar […]
2019 has been quite a year and my blog views are the highest they have ever been. They could have been even higher had I written more articles instead of resting on my laurels after reaching ONE MILLON total views in June of this year. Will try harder in 2020! Things are so hectic I […]
It’s well known that Neuroendocrine Cancer is difficult to detect and as a consequence, many people are not diagnosed until late stages. The difficulty in detection is not just focussed on the complexity of the disease but also the lack of understanding within the medical community who don’t always see sufficient evidence to refer the […]
When I was being told I had an advanced and incurable cancer, I did what most people seem to do in movies ….. I asked “how long do I have“. The Oncologist said ” … perhaps just months“. That must have been quite a shock because for a few moments after that, I heard nothing […]
Well known UK actress Olivia Williams has been diagnosed with a functioning pancreatic NET called a VIPoma. She played Bruce Willis’ wife in the blockbuster Sixth Sense in 1999. She is also known for her roles in TV dramas such as ITV’s The Halcyon and American science fiction thriller series Counterpart. And she was on […]
I’m contacted almost daily by the ‘undiagnosed’ who suspect they have Neuroendocrine Cancer, often because they appear to be displaying the symptoms of one of the associated syndromes and my large internet footprint leads them to me. These are some of my most difficult questions. I’m always very wary of initially agreeing with their assumptions […]
Double Neuroendocrine Cancer is a complex and difficult disease to diagnose, many people struggle with symptoms for some time before they are formally diagnosed. Some continue to struggle after diagnosis. There are many facets that can confound a physician – at diagnosis and beyond. Double Toil If it’s not enough just to have tumours growing […]
Another year, another flu shot. Since my cancer diagnosis, I’ve had one each year. To me it’s really important protection even though I know it’s not 100% effective, it’s better than nothing. As someone who lives with metastatic and incurable Neuroendocrine Cancer, I know that my immune system may be compromised and having got this […]
[…] Ronny’s latest post – BREAKING NEWS – US FDA Approves Lutetium Lu 177 dotatate (Lutathera®) – PRRT? […]
Positive Reinforcement – Required Treatment
https://polldaddy.com/js/rating/rating.js
😊
Excellent research Ronny. Getting a global view of the current status will be very helpful to any folks unable to receive the PRRT in their homeland.
Big Thankyou for your continued efforts and sharing data as you receive it!!!
https://polldaddy.com/js/rating/rating.js