This is the second part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation diary” […]
This is the second part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation diary” […]
This is the second part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation diary” […]
This is the second part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation diary” […]
This is the third part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation […]
This is the second part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation diary” […]
It’s been over a week since I came out of my self imposed isolation of 14 days after developing “a new and continuous cough”. Although I’m much better now, nothing has really changed in that I’m sticking to my own property pretty much all of the time. In case you missed my 14 day self […]
This is the second part of a new series entitled Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions. During my self imposed isolation of 14 days after developing “a new and continuous cough”, I documented almost daily during this period but only on my public Facebook page entitled “my 14 day self isolation diary” […]
I really like this video because it covers the positives of the coronavirus crisis, despite the daily gloom. At the time of writing, it’s clear things will get worse before they improve. However, this crisis will end sometime, hopefully soon; and we’ll look back on this period with multiple emotions. Of course we will be […]
COVID-19 reminds me of some of the issues with Neuroendocrine Cancer e.g. is this a normal day to day cold/flu/chest issue or is it COVID-19? At least COVID-19 is the number one awareness topic in the universe so people are very very aware. Just as well because it has the potential to kill hundreds of […]
Haringey Council in London has signed up to raise awareness of Nets, this needs to be on a bigger platform to explain the difference and help to prevent confusion.
What’s needed is a high level debate on prime-time TV at about pNETs vs pancreatic cancer. If these famous actors and doctors like the Mayo oncologist who has it would come on board then awareness would be raised. Just need a contact in the BBC who knows someone with it to organise it. I live in Australia but I wrote to Boris and the UK Health Minister etc etc re: 2019 World NET Cancer Day but because of Brexit no one responding 🙂
Try again in 6 months! Not sure knowledge is the issue. The issue is doctor parlance which is then mimicked by the media without any context. Doctors are part of the problem.
So frustrating!
A good article, and can totally relate to the ‘I told you I was ill’, but once again they focus gets shifted to the organ type rather than the cancer type, so frustrating…
Oh God, not again! More harm than good can be done by the confusion and lack of rigour. It’s a bit like saying gastroenteritis and dysentery are the same disease. And yes, like macherie48, I think it would be a good idea to contact her. Onwards!
Contact her Ronny. I felt that ‘here we go again confusion’. Thanks for sharing.