Buy me a cup of tea or two? Change the number below to increment. i.e insert 2 = £8, 3 = £12, etc
Overheads to run this site, e.g. software packages, domain registration fees, software tools, misc items. Donate £4 or more so I have the fuel to keep on providing great content!
£4.00
I started my “sometimes you gotta climb that hill” series/campaign some years so. I used it as a metaphor based on my own experience of actually climbing up hills. In the first couple of years after diagnosis, there was no way I could have done some of the physical stuff I can do now – having 3 surgeries and recovering from all 3 put paid to that. But in hindsight, I don’t believe I could have done some of these hills before I was diagnosed! To be bluntly honest with myself and you guys, I was too busy at work to keep myself in shape.
One of the first hills to climb became apparent immediately after diagnosis. How would this affect me, my wife, my family, my work, my life? I kind of just dealt with it but there was an amount of ‘denial’ which made me doubt that this was going to change anything.
BUT …. some hills are false peaks
I climbed the ‘diagnostic hill’ only to find bigger hills beyond it.
Having had 3 surgeries and some minor procedures in between, there is no doubt that these are fairly sizeable hills to climb and tough ones too. Pain after the surgery is to be expected, it’s part of the recovery. Pain-killing drugs help though.
The biggest hill in this phase was my first surgery, major surgery which lasted 9 hours and resulted in 18 days in hospital for recuperation. I had an infection which made it a tougher climb. The second and third surgeries were smaller peaks but still challenging. You can read about my escapades by clicking here or on the picture below.
I had to learn quickly with how to deal with living with cancer, I was still working. I know many people struggle with this. I didn’t outwardly show any signs of issues, but I was learning more and more as time went on, my employer was generous. The work did distract from some of the struggles. Despite some stability in terms of tumours, I was developing add-on problems via the cancer, both in incidental findings and side effects of the cancer and drugs had some effect, particularly dealing with a left hydrocele and a sub 2cm thyroid nodule. I’m fairly certain that some of my issues were also related to the long-term effects of malabsorption. In the middle of all this, I decided to retire early so I could concentrate on a bit more of life. I loved working but not if it was contributing to my issues, not if it was going to contribute to an earlier demise.
At this point, I was even thinking this disease would eventually kill me and perhaps sooner than I would like. Spoiler alert – I didn’t die! I’m much more confident today. I’m still here.
After 10 years of surveillance, from monthly in the early days, eventually stabilising at 6 monthly periods, I changed to 12 months. For me, the latter was a major sign of stability. By this stage I had a great deal of knowledge, a great relationship with my team, and I knew the signals. I had learned over the years that any abnormal signals in between these 12 months periods would result in ad hoc interventions to ensure continued stability or a reset. The latter doesn’t scare me, because I know it’s required to return to stability, e.g. it will keep me alive and enjoying life. Consequently, the ‘surveillance hill’ I climb each 12 months has effectively reduced in size, and I gently trot over it with little emotional pain. Read more about why surveillance is a positive by clicking here or on the picture below.
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted. Please check any references attached.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
Thanks for reading.
Blog Facebook. Like this page please.
Personal Facebook. Like this page please.
Awareness Facebook Like this page please.
Follow me on X (formerly twitter)
Check out my online presentations
Check out my WEGO Health Awards
My diagnosis came with many strange words including, “carcinoid” and “neuroendocrine” ……… can you spell that please, I said to the doctor. I had a
Ronny Allan’s ‘PoNETry’ © series can be shared with poetry credit to: RonnyAllan.NET Thanks for reading Ronny I also have one about Lanreotide (or “butt
When I was diagnosed, I didn’t even feel ill. It was therefore a bit of a shock being told I had metastatic cancer, advanced enough to
I was assessing performance of the awareness period in November 2025 on Facebook and was astonished to find the size of my reach on that
Here is the monthly summary of November 2025 on RonnyAllan.NET – Every share helps someone understand or even work towards a diagnosis, discovery of the
Discover more from Ronny Allan – Living with Neuroendocrine Cancer Subscribe to get the latest posts sent to your email. Type your email… Subscribe
Bone metastases in Neuroendocrine Tumours (NET) Many of you will know that I am a stage IV small intestine NET and I have one bone
What is Radioligand Therapy? When you browse the internet, you may see the term “Radioligand Therapy (RLT)” and wondered what it was. There’s a simple
D Day I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea
Buy me a cup of tea or two? Change the number below to increment. i.e insert 2 = £8, 3 = £12, etc
Overheads to run this site, e.g. software packages, domain registration fees, software tools, misc items. Donate £4 or more so I have the fuel to keep on providing great content!
£4.00
Subscribe to get the latest posts sent to your email.
