Best wishes to Joaquin Castro

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Who is Joaquin Castro?

I have an international following so many people outside of USA may not know much about Joaquin Castro.  He is an American lawyer and Democratic politician who has represented Texas’s 20th congressional district in the United States House of Representatives since 2013. The district includes just over half of his native San Antonio.

He was diagnosed with a Small Intestine NET in July 2022 after an incidental finding while he was working in Spain.  His car hit a boar on a highway the night before he was due to fly home to the US.  He was taken to hospital for a check up. The hospital spotted some abnormalities in his scan and advised him to visit his doctor on return to US.

One year later, he has told his story via a twitter thread.  As many of you don’t have a twitter account, I’ve cut and pasted this great story below.  It’s in parts but easy to follow (on twitter each tweet has limited character space).

That boar may have saved my life.

This twitter story has resulted in a huge amount of awareness and it also made TV stations of course.   This story on twitter may resonate with many of you.

Joaquin Castro – his twitter story

@JoaquinCastrotx
One year ago today I found out I had cancer. I was chairing a conference in Bilbao, Spain and was set to fly home early the next morning. Traveling back to Bilbao on a dark highway, the driver of our car hit a boar going 70mph. That boar may have saved my life.
 
 

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@JoaquinCastrotx

After a few minutes an ambulance came and asked if I wanted to go to the hospital. I almost said no but my hand had started to swell and get red. I figured that, on the chance I’d broken a small bone in my hand, I should probably get it checked out. A quick X-ray, I thought. 2/
 
 
@JoaquinCastrotx
But as soon I arrived they treated me like a full blown trauma patient. Neck brace, IV, MRI with contrast — all of it. The doctor said things seemed normal and was just about ready to discharge me. They moved me to another room to take out the IV. Then the doctor came back. 3/
 
 
 
 
@JoaquinCastrotx
She took a second to close the curtain surrounding my bed, making sure it was as closed as it could be. She had been speaking to the nurses in Spanish but shifted gears, struggling to let me know in English. I’ve never wished I could speak better Spanish than at that moment. 4/
 
@JoaquinCastrotx
Between two languages I heard — “My radiologist called me. He said he believes he sees two neuroendocrine tumors that have spread from your small intestine to your liver. I hate to be the bearer of bad news.” I asked some questions and then she left. I never got a bill. 5/
 
Joaquin Castro
 
@JoaquinCastrotx
I missed my flight the next morning and instead got home on the Fourth of July. Before this I’d disliked blood, needles, doctor’s offices and had never been hospitalized for anything. Over six weeks I’d have enough blood draws, CT scans, PET scans, MRIs, to last a lifetime. 6/
 
Joaquin Castro
 
@JoaquinCastrotx
As a legislator I’ve always been supportive of fighting cancer. But the idea of me getting cancer hadn’t crossed my mind much. When you grow up Hispanic in Texas you’re mostly worried about diabetes. It turns out that my grandfather, whom I never knew, died of cancer. 7/
 
Joaquin Castro
 
@JoaquinCastrotx
I could hardly pronounce “neuroendocrine” tumor, a rare form of cancer, when I got to MD Anderson in mid-July 2022. But I knew that any tumor spreading across your body isn’t good. I hadn’t told many people about my diagnosis even as so many things raced through my mind. 8/
 
 
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Author’s note: I have Mayo doctors on record saying “Repeat after me, NETs are not rare”
Joaquin Castro
 
@JoaquinCastrotx
My younger daughter turned two months old on the day of my accident. I wondered how much longer my kids would have their dad around. Would I see them graduate from high school, get married, have kids of their own? I imagined them years from now, still young, without me. 9/
 
 

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Joaquin Castro
 
@JoaquinCastrotx
MD Anderson is part of the Texas Medical Center in Houston, the largest medical complex in the world. Neuroendocrine tumors #NETs are graded from 1 to 4 depending upon how quickly their cells divide and grow. In other words, how aggressive they are. 1 is slow, 4 is fast. 10/
 
Joaquin Castro
 
@JoaquinCastrotx
After a liver biopsy, PET scan and more tests I got good and bad news. The #NETs were Grade 1, growing slowly and relatively small. But they had spread from my small intestine to my liver, a bunch of lymph nodes and near my lung. I had likely had them for several years. 11/
 
 

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Joaquin Castro
 
@JoaquinCastrotx
My oncologist put me on a monthly Lanreotide injection, a drug meant to slow, and hopefully freeze the growth of #NETs. It does not, however, shrink them. Lanreotide is a specialty drug. List price per injection — $24K. The insurance actually pays $6.5K every time I take it. 12/
 
Joaquin Castro
 
@JoaquinCastrotx
The insurance company negotiates down with the provider from $24K to $6.5K, covers that, and I pay $60 out of pocket monthly. But millions of Americans have no insurance at all. Millions more don’t have enough. They can’t afford the treatment they need to fight off cancer! 13/
 
Joaquin Castro
 
@JoaquinCastrotx
When I was young I spent countless hours at Robert B. Green, the public hospital, waiting with my grandmother for her diabetes treatments. Growing up, and later as an adult, there were times I had no health insurance. Today I pay $1350 a month for my family’s insurance. 14/
 
Joaquin Castro
 
@JoaquinCastrotx
Even so, over the past year I’ve probably spent $8K out of pocket. And that’s with great insurance. And it’s only year one. I keep thinking — what if this had happened when I didn’t have insurance? Or before the ACA – with lifetime caps and pre-existing condition exemptions? 15/
 
Joaquin Castro
 
@JoaquinCastrotx
No one should suffer with cancer, diabetes, MS, schizophrenia or any other mental or physical illness just because they can’t afford care. America needs universal healthcare. We’re a rich country. To watch our people go bankrupt, suffer or die like this is unconscionable. 16/
 
Joaquin Castro
 
@JoaquinCastrotx
In late February, I had major surgery to remove some of the cancer. The surgeons took pieces of my colon and small intestine, 44 lymph nodes, appendix and gall bladder. But they opted against liver surgery because there are tumors on both sides, making surgery more risky. #17
 
 

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Joaquin Castro
 
@JoaquinCastrotx
So, unless something changes, I will have cancer for the rest of my life. I will never get to ring that bell. But, unless something changes, cancer won’t take my life. Last month I went back for scans. The remaining tumors haven’t grown. The Lanreotide is doing its job. 18/
 
@JoaquinCastrotx

I’m hopeful for

Cancer Moonshot (don’t forget neuroendocrine cancer) and all of the promising research that’s taking place. Thank you to everyone who’s been so kind to me over the past year – family, friends, strangers. Here’s to many more. With much love, Joaquin. END

 

Joaquin is on Lanreotide and he speaks from first-hand experience about the issues with the cost of Lanreotide in US and insurance.  This will resonate with many of you.  If you cannot see the video, try this link

https://twitter.com/i/status/1676044978231947265

I’m sure, like me, you all wish Representative Joaquin Castro the very best for an ongoing recovery and the best of health with his family.

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. 

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.   

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

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A cup of tea


I would also mention those who contributed to my “Tea Fund” which resides on PayPal.  You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one.  Clearly, if you have a PayPal account, the process is much simpler 

Through your generosity, I am able to keep my sites running and provide various services for you.  I have some ideas for 2023 but they are not detailed enough to make announcements yet. 

This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)

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