
Neuroendocrine Cancer: I hadn’t heard of it until I was diagnosed with it
My diagnosis came with many strange words including, “carcinoid” and “neuroendocrine” ……… can you spell that please, I said to the doctor. I had a
It’s hard to be positive when you don’t know how you’re doing. The only way to know how you’re doing is to get professional surveillance. This is precisely why I see getting surveillance (scans and other imaging, tests, etc) as a positive. Even if something isn’t quite right, at least you know, your doctors know, and they can watch it or do something about it. They simply can’t do that if you’re not getting surveillance. This is precisely why it’s a positive thing, i.e. if you don’t get it done, you don’t know how you’re doing – that is a more worrying situation in my opinion. Surveillance is meant in the widest context, it can range from a telephone appointing asking questions and getting answers, all the way through to scanning.
Testing needs to be done. There’s an old saying that I truly believe in – “Don’t cross that bridge until you come to it” and it decodes in various contexts to something like “don’t worry about things in the future you cannot control”. In terms of test results, those will be what they will be, and no amount of worrying will change that fact. It’s wasted energy. Sit tight, wait and focus on other things until your doctor gives you the results.
I wrote some tips to try to avoid this fear by turning surveillance into a positive. You can read that here or by clicking on the heading or picture.

I realise not everyone is wired in the same way to handle fear and worry. But worrying about things you cannot control might be wasted energy. Try these 5 tips by clicking here or on the picture.

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Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted. Please check any references attached.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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