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Ronny Allan
Edit 2023: I guess I was starting to recognise ‘cancerversaries’ at this point. At year 5 I started the “I’m still here” series of posts. Even I was recognising my change in attitude to this diagnosis, recognising that I might just live, and live fairly normally.
Original Text from 26th July 2014. On Saturday, I glanced at the calendar on my phone and recognised the date as some sort of anniversary – 26 July. It was exactly 4 years to the day I received my diagnosis of Metastatic Neuroendocrine Cancer.
It all began 2 months previously with a routine asthma clinic appointment when I mentioned to the Nurse Practitioner that I thought I’d lost half a stone in weight. She immediately said, “did you mean to lose the weight” and the answer was “no” on the basis that I just simply thought I was heavier. As a precaution she sent me for a set of blood tests and then a retest. I later marched into the GP’s office (having been asked to come to the surgery) to hear the GP say, “I didn’t expect such a well-looking man given the haemoglobin results I’m looking at”.
I was eventually referred to a specialist whose immediate words were “something isn’t right here”. Following a bunch of tests, he then told me he had “found something very unusual“. More tests and even more tests………. and then on 26 July 2010 I was told I had widespread and incurable Neuroendocrine Cancer which was quite uncommon and without treatment I would eventually die.
A lot has happened since then. I’ve had approximately 25 hours of surgery/invasive procedures much of it under general anaesthetic and around 34 days in hospital. I’ve had countless scans and other tests. I’ve had more injections than I’ve had hot dinners – this is actually true! More importantly, I’m still alive and kicking! I’m feeling great too having recently completed a 6-day hike along the 84 miles of Hadrian’s Wall.
If you want to read (and hear) more detail about my diagnosis, check out these blog posts: Diagnosis – I’m no longer in control and Did you mean to lose weight?
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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A cup of tea
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Happy 4th Anniversary. What a journey you’ve had. 😄
Thank you!
Well done Ronny! A “life” sentence is a great choice!