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Edit 2023: I guess I was starting to recognise ‘cancerversaries’ at this point. At year 5 I started the “I’m still here” series of posts. Even I was recognising my change in attitude to this diagnosis, recognising that I might just live, and live fairly normally.
Original Text from 26th July 2014. On Saturday, I glanced at the calendar on my phone and recognised the date as some sort of anniversary – 26 July. It was exactly 4 years to the day I received my diagnosis of Metastatic Neuroendocrine Cancer.
It all began 2 months previously with a routine asthma clinic appointment when I mentioned to the Nurse Practitioner that I thought I’d lost half a stone in weight. She immediately said, “did you mean to lose the weight” and the answer was “no” on the basis that I just simply thought I was heavier. As a precaution she sent me for a set of blood tests and then a retest. I later marched into the GP’s office (having been asked to come to the surgery) to hear the GP say, “I didn’t expect such a well-looking man given the haemoglobin results I’m looking at”.
I was eventually referred to a specialist whose immediate words were “something isn’t right here”. Following a bunch of tests, he then told me he had “found something very unusual“. More tests and even more tests………. and then on 26 July 2010 I was told I had widespread and incurable Neuroendocrine Cancer which was quite uncommon and without treatment I would eventually die.
A lot has happened since then. I’ve had approximately 25 hours of surgery/invasive procedures much of it under general anaesthetic and around 34 days in hospital. I’ve had countless scans and other tests. I’ve had more injections than I’ve had hot dinners – this is actually true! More importantly, I’m still alive and kicking! I’m feeling great too having recently completed a 6-day hike along the 84 miles of Hadrian’s Wall.
13 years on
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European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Digestive Neuroendocrine Carcinoma
This ENETS guidance paper, developed by a multidisciplinary working group, provides up-to-date and practical advice on the diagnosis and management of digestive neuroendocrine carcinoma, based
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European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Duodenal neuroendocrine tumours (NETs) G1–G3
The ENETS 2023 guideline for dNETs are combined with the guidelines for Gastric NET (gNET) due to their close relationship in anatomical terms. But there
D Day I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea
Another episode in the expert opinion series. I thought this might be useful for some of you after an interesting ‘google alert’ brought up these
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