Lanreotide: Eleven more years please!

Back in February 2015, I wrote an article called “Four more years” and the title came from an election campaign happening at the time when I had been on Lanreotide for approximately four years.  Inspired by this campaign slogan, I too wanted four more years and crafted the blog post.

However, I was underselling myself as I’ve now hit 11 years of Lanreotide on 9th December 2021.  On that day in 2010, I was still recovering from major surgery and hadn’t had any somatostatin analogues since leaving hospital on 26th Nov.  Prior to surgery, I had been taking daily shots of Octreotide which did have the effect of reducing the symptoms of (so called) carcinoid syndrome.  I was also administered peri-operative octreotide to de-risk the chances of a hormonal crisis during the surgery and in the hours after it.  Once the IV octreotide was removed, the nurses injected a daily shot of octreotide as part of my regimen while recovering in hospital.  Before surgery, my oncologist and surgeon mentioned Sandostatin LAR after surgery and was surprised when told a nurse would come to my home to administer Lanreotide on 9th Dec 2010.  I had heard of it and knew it was a newer type of somatostatin analogue with a shorter needle.

By the 9th December 2010, I was feeling a lot stronger after 13 days at home since discharge. The nurse, who was to become the primary injector over the next 3 years, arrived and we went through the instructions – it was a first for both of us.  I tried the stand-up method on that day, it felt not too bad but later I developed a granuloma (author’s note: that first granuloma took a few years to disappear).

Here we are exactly 11 years later, 144 injections later, the injection is now a ‘walk in the park’ and just another day in the office of life.   And I’m still here.

For my Lanreotide experience, please see these posts:

Lanreotide: it’s calling the shots – click here.

Lanreotide vs Octreotide – click here.

At Home with Lanreotide (and Octreotide) – click here

Subscribe to my newsletter

Thanks for reading.

Ronny

I’m also active on Facebook. Like my page for even more news. Help me build up my new site here – click here and ‘Like’

Sign up for my newsletters – Click Here

Disclaimer

My Diagnosis and Treatment History

Follow me on twitter

Check out my online presentations

Check out my WEGO Health Awards

Like my new awareness page – click here or on the photo.  (Like rather than follow please!)


Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!

patients included

Please Share this post for Neuroendocrine Cancer awareness and to help another patient

 
 
 
Facebook
Twitter
Pinterest
WhatsApp
Email

I love comments - feel free!

%d bloggers like this: