
Illustration of histotripsy technology. Image courtesy of Medicine at Michigan Magazine. A new technique that destroys cancer using soundwaves. It also spurs the immune system to kill off any of the tumour left, scientists have revealed. The non-invasive treatment only needs to be partially effective to stop the cancer spreading. It is currently being tested on […]

I’m always amazed at the responses to my post “I’m still here” and it has become a bit of a catchphrase I use, even in response to a question in my private group. What I see is that many of us are still here and I wanted to dedicate this post to those who frequently […]

The term invisible illness refers to any medical condition that is not outwardly visible to others, even healthcare professionals. Invisible illnesses encompass a broad range of conditions, including heart disease, diabetes, dementia, psychiatric illness, autoimmune disorders, and even cancer. Many Neuroendocrine Cancer patients look outwardly healthy, and this can often lead to a lack of […]

Breaking News It doesn’t seem that long since we got the new improved injection delivery system for the current model of Lanreotide. I had to look at my blog articles for the announcement of that and was surprised it had already been 3 years. It may be a shorter time period for many though, UK […]

The delayed-release capsules contain 20mg of octreotide. The mainstay somatostatin analogues for Neuroendocrine Tumour patients are Lanreotide and Octreotide and I have blogged or mentioned them frequently, and they are probably two of the most written words in my private patient group ……. coupled with “injection” or “shot”. For years, people have talked about the […]
Love you are doing this . . . So inspirational . . . I’m a wee lass in Oregon with a type of tumor called GIST not known to be neuroendocrine but I think I just proved it is and will be changing how doctors think about my cancer (SDHB mutation dad died of paragangliomas). Love the song 500 miles . . . In January 2020 my husband and daughter (age 35) sang that song in concert in Ashland, Oregon. Little did I know COVID was about to pounce and I’d end up in hospital for emergency surgery in March the night hospital COVID shutdown started thus my husband couldn’t be with me. I played the recording of that song for the nurses and it helped get me through that terrible surgery in which I almost died. Then I had to have another surgery in October 2021 during COVID at our National Cancer Institute when the same tumor tried to kill me again. I’m also a patient advocate but for a much smaller group of patients who have the SDHB inherited/germline mutation of Gist/Para/Pheo.
Nice to hear from you again and glad you’re OK after surgery. Great story about the song!
Fantastic accomplishment! You are such an inspiration!
thanks