Many things in life can seem like a bump in the road or a journey along a windy road not sure where the next turn is.  In some ways, a cancer diagnosis is another of these inopportune moments, albeit one with many facets.  With incurable Neuroendocrine Tumours, many people need to be prepared for a long journey.

Beware of the common trap of thinking in terms of all or nothing; or rushing to conclusions. 

Even with localised NETs which have been removed with curative intent, the journey may continue for a while until your doctors and you are sure the destination has been reached.  In a few cases, journeys may be extended or new ones started. 

For late stage incurable NETs, thinking your journey is going to be a short one is always there but acceptance of the journey is advisable and you need to navigate it the best you can, because for most it will be a long one.  In my own journey experience, for a while, I thought it was going to be short one – but it wasn’t!  Taking friends with you on this journey can often be helpful.  You can find those on the same journey as you in my private Facebook group (see green box below). 

Sometimes, a map is necessary together with scheduled or impromptu stops. 

On this journey, services and inspections will need to be done and parts may need to be changed.  For services and inspections, make sure you set up a decent schedule and I don’t mean just a NET specialist, see your primary care doctor (GP/PCP) when you need to and take advantage of screening checks available.  Sometimes, your doctors might need to open your bonnet/hood, often that is the best way to ensure you’re running as smoothly as possible.

Sometimes you need to stop for a rest, sometimes you need to fill up with fuel.  But it’s not quitting or giving up, it’s resting and refuelling; and everyone needs that from time to time.  Often, the stops can be peaceful and scenic. They can give you time to appreciate life and sometimes they are more interesting than the journey!

However ……. it’s not a perfect journey and don’t always trust the SatNav!  Short notice deviations might be required and these can sometimes be scary.  Fortunately these can also produce some surprising distractions and better outlooks on life.  

Take advantage of your journey, enjoy it as much as possible as it includes living your life. 


Take care

Ronny