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Ronny Allan

Ronny Allan is a 3 x award-winning accredited patient leader advocating internationally for Neuroendocrine Cancer and all other cancer patients generally. Check out his Social Media accounts including Facebook, BlueSky, WhatsApp, Instagram and and X.

Introduction

I found these 10 short video series from OncLive very useful. Each video ranges from 2 – 5 minutes long and is very easy to watch and digested. Not only a succinct primer on (so-called) carcinoid syndrome but also an update on the evolving approaches. And the series also includes information on Hedinger Syndrome (carcinoid heart disease) which can be caused by the effects of this syndrome.

The panel includes some ‘big hitter’ names in our scientific community including:

Satya (Nanu) Das, MD, MSCI (Oncologist)
Jerome Zacks, MD (Cardiologist)
Rodney Pommier, MD (Surgeon)

Video list (click on the blue link to watch each one)

Episode 1 – Overview of Neuroendocrine Tumors (NETs) (onclive.com)

Episode 2 – Overview of Carcinoid Syndrome (CS) (onclive.com)

Episode 3 – Overview of Carcinoid Heart Disease (CHD) (onclive.com)

Episode 4 – Management of Carcinoid Syndrome-Related Symptoms (onclive.com)

Episode 5 – Diagnosis and Management of Somatostatin Analog-Refractory Carcinoid Syndrome (onclive.com)

Episode 6 – Available Treatment Options for Somatostatin Analog-Refractory Carcinoid Syndrome (onclive.com)

Episode 7 – Data from the TELEPATH Trial and Real-World Analyses (onclive.com)

Episode 8 – Prevention, Treatment, and Management of Carcinoid Heart Disease (onclive.com)

Episode 9 – Unmet Needs for Patients with Neuroendocrine Tumor-Associated Carcinoid Syndrome (onclive.com)

Episode 10 – Advice for Community Physicians Treating Patients with Neuroendocrine Tumor-Associated Carcinoid Syndrome (onclive.com)

The Syndromes of Neuroendocrine Cancer – Early signs of a Late Diagnosis?

Carcinoid syndrome is only one of several hormonal syndromes involved, read about the others here.

Click on the picture to read more

Neuroendocrine Cancer – don’t break my heart

My compendium of information contains more detail on Hedinger Syndrome (carcinoid heart disease).  

Click on the picture to read



Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.  Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional as they are not members of the private group or followers of my sites in any official capacity.  Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

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Ronny

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Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!

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