Expert Perspectives in Neuroendocrine Tumors and Carcinoid Syndrome

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I thought this series might be useful for some of you after an interesting ‘google alert’ brought up these discussions.  It comprises a roundtable discussion with known NET specialists and some big hitters too.  

Jonathan Strosberg MD from Moffitt Cancer Center Florida

Jennifer Eads MD from University of Pennsylvania, Abramson Cancer Center

Thorvadur R. Halfdanarson MD from Mayo Rochester

The discussion is centred on numerous scenarios, and I’ll list them all below. 

What are some of the recent developments in the treatment of NETs and carcinoid syndrome, and what might be on the horizon?

The first one

Somatostatin analogues (SSAs) are a therapeutic mainstay for the treatment of neuroendocrine tumors (NETs) and carcinoid syndrome, but, when progression occurs, additional interventions are needed. Some of the novel strategies that are being explored to treat patients with advanced NETs of varying origins include chimeric antigen receptor (CAR) T-cell therapies and peptide receptor radionuclide therapy (PRRT) using alpha-particle emitters.

Q: What are some of the recent developments in the treatment of NETs and carcinoid syndrome, and what might be on the horizon. 

Expert Perspectives in Neuroendocrine Tumors and Carcinoid Syndrome

Neuroendocrine Tumors and Carcinoid Syndrome: Individualizing Treatment to Match the Tumor Burden and Symptoms

In this episode – How do you individualize the approach to NETs in light of the primary tumor location, metastatic bulk, symptoms, and presence/absence of carcinoid syndrome?   Click on the picture to read.

Imaging to Monitor Treatment Response in Patients With Advanced Neuroendocrine Tumors

Another episode in the expert opinion series.  I thought this might be useful for some of you after an interesting ‘google alert’ brought up these discussions.  It comprises a roundtable discussion with known NET specialists and some big hitters too.  “Dr Thor” is a favourite of mine.  Click on the picture to read.

Systemic Treatments for Advanced, Well-Differentiated, Small-Bowel Neuroendocrine Tumors That Progress on Somatostatin Analogues

Another episode in the expert opinion series.  I thought this might be useful for some of you after an interesting ‘google alert’ brought up these discussions.  This one from Dr Jonathan Strosberg.  Click on the picture to read.

When Should Genetic Testing Be Performed in Patients With Neuroendocrine Tumors?

Another episode in the expert opinion series.  I thought this might be useful for some of you after an interesting ‘google alert’ brought up these discussions.  This one from Dr Jennifer Eads.  Click on the picture to read.

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. 

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.   

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

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I would also mention those who contributed to my “Tea Fund” which resides on PayPal.  You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one.  Clearly, if you have a PayPal account, the process is much simpler 

Through your generosity, I am able to keep my sites running and provide various services for you.  I have some ideas for 2023 but they are not detailed enough to make announcements yet. 

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Expert Perspectives in Neuroendocrine Tumors and Carcinoid Syndrome
By Ronny Allan

Ronny Allan is an award-winning international patient leader advocating for Neuroendocrine Cancer and cancer patients generally. Check out his Facebook pages and twitter accounts.

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