
Neuroendocrine Cancer: I hadn’t heard of it until I was diagnosed with it
My diagnosis came with many strange words including, “carcinoid” and “neuroendocrine” ……… can you spell that please, I said to the doctor. I had a
I was recently reminded of a post I wrote called “The Other 5 Es”. I later changed the name to “The 6 Es”. The reason I wrote that post was due to the blanket use of something called “The 5 Es of Carcinoid Syndrome” in my private group. Taking this out of context can lead to unnecessary worry and constraints for many.
I laughed out loud when I saw the reminder from my Facebook where I introduced this new blog post and it simply read “Eat that doughnut”. What I didn’t confirm was that I was using a metaphor i.e. I was inferring that we shouldn’t unnecessary restrict our lives when something is low risk, particularly when something we are told is a ‘no no’ has been said out of context and does not apply to you as an individual NET patient (50 shades). Day to day living has risks but we get on with it right?
When someone is given added years to their life, it’s important to also add life to those years. So eat that doughnut!
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