Scroll down to check out the doctors list just below

Scroll down to also see information on “NET Aware” Dietitians.

Important note

The accuracy of these lists depends on the accuracy of the sources.  If you think the source is wrong, let them know, not me.  However, you can also join my private Facebook group and someone in there will often be more up to date than the source! 

Finding experts

Many people ask for a definition of a “NET Specialist”.  There’s also discussions surrounding Multidisciplinary Teams (MDT)/Tumor Boards and Centres of Excellence (CoE).  Why are they important, who should I see, and where should you go; are all relevant questions.  Sometimes it’s better to have these discussions with other patients/caregivers (joining my group below adds to these lists).  But understanding these terms should help you find what you need.

There is often a focus on an individual doctor but the team approach is proven to be beneficial.  How that is achieved may differ from country to country (or even hospital to hospital).  The type of doctor is also another frequently asked question.  In order to understand these terms, including “what actually is a NET specialist”, perhaps read this blog post below first.

For definitions, please read my post covering NET Specialists, MDT and CoE. 

The next section will provide you with the “list of lists” but local knowledge from other patients is very useful, and that means joining my private Facebook group, the largest of its kind in the NET Community. Other patients are a very good source – you can also ask other patients in my group, they have so much knowledge and experience: Click here to join.

EUROPE

Clicking BLUE bold links will take you to lists where applicable. 

Most European Countries: European NET Centres of Excellence

Other European areas featured:

UK – UK has a large number of ENETS Centres of Excellence but also has many MDTs).  Supplementing the ENETS list, see here at UKINETS: UK NET Centres.  The NC UK page might be more up to date than UKINETS.  Click here to read that.

France.  There are 4 centres listed in the ENETS list above but this centre is very useful and employs many well known NET specialists. Gustave Roussy, Paris Gustave Roussy is recognised by the National Institute of Cancer as a referral centre for treatment of endocrine cancer. In this context we participate in a number of consultative meetings of the network of recognised French centres such as RENATEN for the TNE (French acronym for NET). Click here to read about the NET MDT led by Dr Eric Baudin.  Neuro-endocrine tumour – Team | Gustave Roussy

Ireland – There is an ENETS Centre of Excellence in Dublin – read more here

Norway – Haukeland Bergen, Rikshospitalet Oslo, St. Olav Trondheim, UNN Tromsø.  According to CarciNor, these hospitals have highly qualified staff on NET, and resources to treat NET.

Russia – Clinical Oncology Research Institute, N. N. Blokhin RCRC RAMS, Address: 24, Kashirskoye sh., Moscow, 115478, RF. NET specialist Alla Markovich

European patients – please let me have your validated countries lists. 

USA

Please note the criteria for being on the USA lists from NET RF and CCF are not clear.  I’m often told by US patients that many are out of date.   Fortunately, local knowledge in my private Facebook group is often more up to date and some of the lists below are based on their input. 

See the NET RF and CCF lists below but I cannot personally guarantee their accuracy.  Errors should be reported directly to NET RF or CCF.  Where I have facts, I can temporarily add change below awaiting update of the lists below.

• The NET Research Foundation has a ‘Doctor Database‘ section which differs slightly from CCF below.
• Here at Carcinoid Cancer Foundation – Find a Doctor

Misc changes that may not yet be incorporated into CCF/NETRF published lists above:

• Added 13th February 2025. Tampa, FL (Feb. 12, 2025) – Tampa General Hospital (TGH) today announced that Dr. Boris Naraev, a medical oncologist specializing in caring for patients living with gastrointestinal, neuroendocrine and endocrine tumors, has joined the TGH Cancer Institute. In addition, he has been appointed as associate professor in the Department of Internal Medicine at the USF Health Morsani College of Medicine. Previously, he served as the Leader of Gastrointestinal, Neuroendocrine, and Rare Cancers Program at the Anderson Family Cancer Institute at Jupiter Medical Center in Jupiter, Florida
  
  From 1 April 2025, Dr. Diane Reidy-Lagunes Appointed Chief of Medical Oncology at Duke University Hospital Department of Medicine (DOM). Dr. Reidy-Lagunes comes to Duke from Memorial Sloan Kettering Cancer Center (MSKCC). 
• Dr Daniel Halperin moved from MDA Houston to Emory Atlanta in September 2024.
• Dr Chandrikha Chandrasekharan is moved from Iowa to MDA Houston in September 2024.
• Oschner/NOLANETS.  Dr Mary Maluccio, Dr Thiagarajan Ramcharan, and Dr J. Philip Boudreaux have now moved from Oschner to East Jefferson Hospital.  The contact information is: 504-444-5585 or during office hours 504-503-5426.  The office is at Yenni Cancer Pavilion at East Jefferson Hospital. 4204 Houma Blvd Metairie 70006, (approx 10 miles from Oschner).   It is my understanding that the brand of “NOLANETS” has gone with them.
• University of Iowa.  One US center is now the first to achieve a European NETs Center of Excellence accreditation – read more here about the University of Iowa Holden Comprehensive Cancer Center – click here
• Dr Yi-Zarn Wang, expert NET surgeon – he’s been moving around lately but as of 5th March 2022 he said, “I am now in Permian Basin-Odessa Midland Texas as the new Program Director of a new general surgery residency program. I have officially joined the faculty of Texas Tech University Health Sciences Center on October 1, 2021.  I have privileges at TTUHSC and our two teaching hospitals. I’ve resumed seeing patients and operating. Thank you again for your unconditional support. My clinic number is 432–703–5555. Fax number 432- 335–1693. Amanda Mendoza will handle my patient appointment appointments. Her email is: amandamendoza@ttuhsc.edu. Her phone number is 432–703–5555 then choose option one. Christina Rodriguez is my nurse.”
• An oncologist – Dr. Daniel Almquist in North Dakota (Sanford Roger Maris Cancer Center, Fargo) appears to have some experience and has connections with Dr Thor Halfdanarson well-known expert at Mayo Rochester, MN
• Dr Aman Chauhan has moved from Markey Cancer Center to Sylvester Cancer Center University of Miami 475 NW 12th Ave Miami, FL 33136.  Tel 305-243-5302.
• Dr Hagen Kennecke.  Is still in Portland but has moved to OHSU Knight Cancer Institute (8th Jan 2024).

AUSTRALIA

Australia – here: Australian NET Doctors

NEW ZEALAND

Dr Ben Lawrence, based in Auckland is a known specialist.  From patient input, Dr Prasanth Hari Dass in Rotorua is seeing NET patients in coordination with Dr Ben Lawrence in Auckland.

Anecdotally from a NZ patient: I have had very good oncology care in both Christchurch and Auckland.  Prof. Sharon Pattison is a very highly regarded NET specialist based in Wellington,  I know other neuroendocrine cancer patients in Dunedin who are under Prof. Chris Jackson.

CANADA

From patient knowledge supplemented from my ‘X’ (formerly twitter) medical contacts.  Plus from CNETS Canada who let me know in November 2025 that a fabulous new comprehensive cancer centre is opening in Alberta (Calgary) where Dr Alexi is based (see Alberta below.

Nova Scotia
– Dr Daniel Rayson, Halifax, , Medical oncologist. Described as the province’s “NET specialist”.
– Dr. Daniel Rayson as the team leader adding that he also oversees the PRRT program.

New Brunswick
– Dr. Mohamad Harb – Medical Oncologist

Newfoundland
Dr. Renee Lester – Medical Oncologist

Quebec
– Dr. Petr Kavan at Montreal Jewish General Hospital (Medical Oncologist)
– Dr Buteau / Dr. Jean Mathieu Beauregard at Quebec Hotel Dieu (Radiation Oncology (PRRT, Ga68)
– Dr Juan Rivera at Montreal General Hospital (Endocrinology)
– Dr Peter Metrakos at the Montreal Royal Victoria Hospital (Surgeon) sees a lot of NET patients.
– On the French side Dr Andre Roy (Surgeon) at the CHUM in Montreal also sees a lot of NET patients.
Dr. Jamil Asselah also treats net patients. He is an Oncologist at McGill, Montreal University Health Centre.

Ontario
– Dr. Simron Singh at Sunnybrook, Toronto – Medical Oncologist.
– Dr. Calvin Law at Sunnybrook, Toronto – (Surgeon)
– Dr Julie Hallet at Sunnybrook, Toronto – HPB Surgeon.
– Dr. Shereen Ezzat at Princess Margaret in Toronto (PMH) (Endocrine Oncologist)
– Dr. Radhika Yelamanchili (Niagara Health System) (also a board member of CNETS Canada).
– London Ontario: Dr. David Laidley (Nuclear Medicine)
– Dr. Daryl Gray (Surgeon), Neuroendocrine Clinic
– Dr. Rachel Goodwin (Medical Oncologist), Ottawa, Ontario
– Dr. Tim Asmis – Medical Oncologist, Ottawa, Ontario

Manitoba
Dr Ralph Wong is an Oncologist with an interest in GI NETs Cross
Cancer Institute/Clinic in Alberta Edmonton
– Dr Koumna, Nuclear Medicine you would normally only be referred to her if you are being considered for nuclear treatment (e.g. PRRT
– A well versed NET oncologist in Edmonton is Dr. Michael Sawyer.

Alberta
Calgary. Dean Ruether is an Oncologist based in Calgary.  He is the lead for local tumour group teams and is responsible for bringing clinical trials for the Endocrine, NET and Prostate patient population in Alberta.
– Dr. Alda Aleksi, Medical Oncologist, Calgary. The Arthur J.E.Child Comprehensive Cancer Centre.  Click here to read more.
– The NET clinic is currently held at the Foothills Medical Centre campus site. The specialists regularly attending scheduled clinics are Dr. Rorstad and Dr. Parkins (both Endocrinologists) and Dr. Pasieka (Surgery). Ms. France Singleton is our Registered Nurse dedicated to the Clinic. Preceding each of the two NET. Clinics per month between noon and 1300 hours a meeting of the Neuroendocrine Tumor Board is convened. This multidisciplinary Tumor Board meeting includes regular representation from Endocrinology, Surgery, Medical Oncology, Nursing, Diagnostic
Radiology, Interventional Radiology and Nuclear Medicine. The NET Board meeting is teleconferenced with physicians, usually medical Oncologists, in Regina, Saskatoon, and Lethbridge, depending on need. Patients for discussion are brought forth by members of the Tumor Board or the off-site Oncologists.

British Columbia
– Dr Jonathon Loree at Vancouver BCCA.
– Dr Sharlene Gill is another Oncologist in BC who is well-versed in NETs and also works within the BCCA. Patients in this area may have
issues with referrals if not living in the local area (as I understand the issue, it’s a BCCA restriction).

With thanks to Jackie Herman of CNETS Canada for validating this info.

SOUTH AFRICA

Cape Town:
Vincent Pallotti Hospital – General enquiries (info@cptnuc.ac.za) or Dr M.Morkel (who is a Nuclear Physician but looks like she sees private patient)

Groote Schuur Hospital

Tygerberg Hospital

Gauteng:

Prof. Jean Botha Head of Liver Transplant Unit at Donald Gordon Medical Centre in JHB.

Prof. Mike Sathekge is a Professor and Head of Nuclear Medicine department at University of Pretoria and Steve Biko Academic Hospital. He also heads the South African Nuclear Medicine Research Infrastructure (NuMeRI).

Lizette Louw is a Nuclear Medicine Physician in JHB lizettelouw@hotmail.com

One patient told me she uses Dr K Tabana at Sandton Oncology JHB.

North West Province:

One patient told me she uses Dr Arno Pretorius, radiation oncologist in Rustenburg.

KwaZulu-Natal:

Dr. Masha Maharaj from Umhlanga Advanced Imaging and treatment.
Adam McCleave of Hopelands Cancer Centre. His email is: adamm@hopelands.co.za

One patient told me she has been treated for 8 years by Dr Spzak, Rainbow Oncology, in KZN adding that this doctor has “excellent knowledge and always best patient care”.

Limpopo:

Getting referred to a NET MDT:   You may be referred to one automatically, but if that doesn’t happen you can ask your doctor for a referral to be made.

INDIA

• CoE for Neuroendocrine Tumours launched at Rela Hospital
  Read more by clicking hereFrom CNETS India:
  These are government owned hospitals. There are no concepts of NET teams in India. These hospitals have all facilities for NETs patients, so each specialty gets high caseloads of NETs.  In that way, these are the centres where you would have the highest chances of being treated correctly.
  • AIIMS, New Delhi.
  • Tata Memorial Hospital, Mumbai SGPGI,
  • Lucknow,
  • Uttar Pradesh PGIMER Chandigarh.

REST OF THE WORLD

This is a work in progress

Brazil

Dr Rachel P Riechelmann, Hospital A. C. Camargo, Departamento de Oncologia Clínica São Paulo, Brazil.

Philippines

St. Luke’s Medical Center in Quezon City has recently opened its Cancer Specialty Center, a facility designed to provide a streamlined system and coordinated approach to cancer treatment. It focuses on several types of cancer, including bone malignancies and sarcoma, neuroendocrine tumors, lymphoma, breast cancer, thoracic malignancies, colorectal cancer, and hepatobiliary and pancreatic cancers.

Read more at:  St Luke’s opens new cancer speciality department

Pheochromoctyoma and Paraganglioma?

Some types of NET are highly specialised and may need even more specialised doctors to treat.  One such example is the Pheochromocytoma (Pheo) and Paraganglioma (Para) group of tumours.  The main Pheo/Para advocate organisation (Pheo Para Alliance (PPA)) has generated an accreditation program where centres of excellence in Pheo/Para can be accredited and listed for patients to reference.  To date, the list of centres to have been accredited can be found here – click here.  Many existing NET MDT will already support this type of tumour.

Neuroendocrine Cancer? – 10 questions to ask your doctor

Once you have a specialist, you should ask many questions and keep a note of the responses.  The best responses should come from a recognised NET specialist at a recognised NET Centre (MDT/Centre of Excellence).

Your are welcome to use my pre-prepared set here – built as a generic set to cover all eventualities.

Neuroendocrine Cancer? – 10 questions to ask your doctor (ronnyallan.net)

“NET Aware” Dietitians

This is a new section launched in 2024

Dietitians are an important source of specialist advice and while there are many Dietitians around, there are not that many who you and I might class as “NET Aware” Dietitians.

Most large NET MDTs/Programmes/Centres of Excellence should have a dietitian source, perhaps embedded in their team.  By virtue of this closeness to NET experts, these dietitians should be aware of the vagaries (heterogeneity) of NET related diet and nutrition issues. That said, if you do not have access to “NET Aware” Dietitian, a Registered Dietitian is the next best thing. Check with your specialist to see if the MDT has access to a “NET aware” Dietitian.

I will build up this section as I uncover those with NET aware credentials.

Tara Whyand

I will open this section with the world renowned Tara Whyand, someone very familiar with NETs and associated Diet and Nutrition issues specific to all the different types and scenarios (surgery/chemo/etc etc). She worked for many years in a large ENETS centre of excellence including involvement in clinical trials.

She now has her own private practice and appointments are available worldwide for online consults.

See details at International Coverage

Contact Tara at Contact

Her website homepage is here at TaraWhyand.com

Australia

Click here NET Aware Dietitians

As at 25th March 2024, it appears Victoria has its own NET Dietitian at Peter Mac but as per the above link, all other states have access to a NSW based private facility via Skype.

Disclaimer

I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.

Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted.  Please check any references attached.

Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

 

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Ronny

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