Since 2015, my message has not changed and it continues to be justified because since then, many important voices in the NEN community have repeated it! However, there has been, and still remains, some intransigence, although some of that has now buckled in the face of the recent US SEER extract from NET specialists and similar for Canadian statistics in 2026. These two pieces of data add to the voices of UK and Australia who were ahead of the game with higher quality data some time ago. Clearly the model is changing and everyone needs to start reframing Neuroendocrine Neoplasms beyond rare. Click here to read more.
However, this is not a time for resting on laurels. Unfortunately, some elements of the NEN community remain entrenched in old thinking, in flawed thinking. I can only describe them as negative disruptors, clinging on to this old thinking. It seems like they refuse to change their mind or plan to change, even when new data from around the world and important voices should persuade them otherwise. Some seem to have really dug their ‘hooves’ in. I firmly believe their stubborn and pig-headed approach continues to harm the efficacy of awareness for NENs. It has to stop.
Every stripe is lost awareness.
Click to read the latest data from US (the largest domino to fall).
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Some content may be generated by AI which can sometimes be misinterpreted. Please check any references attached. Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
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