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Patient Support Group
COVID-19 Crisis
I will take the vaccine, no question
Coronavirus 19 (COVID-19): risks for cancer patients
COVID-19 and Cancer Treatment and Surveillance
Why Coronavirus Anxiety is Hard to Control – a Neuroendocrine Cancer patient perspective
My Self Isolation Diary – COVID-19
Epidemiology
Neuroendocrine Neoplasms – not as rare as you think
The Invisible NET Patient Population
Diagnosis
10 questions to ask your doctor
Where to find a NET Specialist worldwide
Neuroendocrine Neoplasms – Grade and Stage (incorporating WHO 2019 changes)
Marker Tests
Tumour markers and Hormone Levels
Imaging
Scans for Neuroendocrine Cancer
Gallium 68 PET Scans – Into the Unknown
Ga68 PET Scan – a game changer?
A needle in a haystack?
Diagnosing the Undiagnosed
Syndromes
The Syndromes of Neuroendocrine Cancer – Early Signs of a Late Diagnosis
Hormones
Serotonin – the NET effect
Neuroendocrine Cancer: A Witch’s Brew
Treatments
Surgery
Surgery for Neuroendocrine Neoplasms – to cut or not to cut?
My Neuroendocrine Cancer Surgery – Small Intestine NET, a patient experience (part 1)
My Neuroendocrine Cancer Surgery – a patient experience (part 2)
Small intestine, large surgery
My liver rescetion
My lymphadenectomy
Surgery is risky but so is driving a car
Surgery for NETs – Chop Chop
Liver Embolization (bland, chemo, radio)
Somatostatin Receptors
Somatostatin Analogues
Lanreotide: Ten more years please!
Lanreotide vs Octreotide
Lanreotide – it’s calling the shots!
At home with Lanreotide (….and Octreotide)
Somatostatin Analogues and delivery methods in the pipeline
Peptide Receptor Radionuclide Therapy (PRRT)
Everolimus (Afinitor)
Sunitinib (Sutent)
Chemotherapy
Telotristat Ethyl (XERMELO®)
Diet & Nutrition
Article 1 – Vitamin and Mineral Challenges
Article 2 – Gastrointestinal Malabsorption
Article 3 – Gut Health
Article 4 – Food for Thought?
Article 5 – Pancreatic Enzyme Replacement Therapy (PERT)
Article 6 – featuring the 2020 video series by Tara Whyand RD
Clinical Trials
Award Winning Blog
The A to Z of Neuroendocrine Cancer
Patient Support Group
Tag: Chronic condition
Things to do today
October 12, 2018
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Poker Face or Cancer Card?
January 27, 2019
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“Not the Stereotypical picture of sick”
September 28, 2016
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