Thanks a MILLION …and then some!

thanks all!
Blog Stats as at right now!
  • 1,730,631 views

I was totally astonished to have been able to accumulate a million views of my blog around the middle of June 2019 and in December 2020, a Christmas present of one and a half million!  When I first set it up in Apr 2014, it was just to help spread awareness whilst I was walking the 84 miles of Hadrian’s Wall with my wife Chris. I never thought for one minute I would reach 1.5 million hits and accumulating around 17,000 followers across all my social media sites.

I’m now heading for 2 million (estimated by 1 Jan 2023) and I often think I might have a screw loose by even thinking about doing that! However, the hits keep coming in – THANK YOU!

My key aims are international level awareness, advocacy, campaigning, and support for NET patients via all my social media accounts. I’m not your regular NET advocate and I do things differently rather than follow the crowd; and I’m certain that fact has played a part in getting to this stage.

People often ask me how I’ve been able to build up my sites and it’s a tricky question because I’m not sure what happened! I just put my head down and attacked the task in my usual tenacious way – so I guess that’s part of my sub-conscious and inbuilt strategy. I did author an article about my blog journey for WEGO Health for those interested – read here

My blog is central to my activities and through this medium and some others, I’ve really invented my own brand of Neuroendocrine Cancer awareness. I pride myself on being an international and independent writer which allows me the freedom of movement I need. So far, I’ve managed to win two international awards breaking through into new areas for awareness. In 2016, I won the WEGO Health Best in Show Community plus finalist in another category, made it to 3 finals in 2017/18 and then won Best in Show Blog in 2018. I took a break from entering these words in 20-19/2020 but in 2021 I am in 2 finals (watch this space).  You can read my WEGO history here

Other Advocate Activities

I don’t just write a blog! I’ve also spoken at many events and to pharma only audiences including Ipsen Global Paris, Ipsen UK, Ipsen Germany, Ono Pharma UK, Royal Marsden Hospital, Wales Neuroendocrine Cancer UK, PLANETS Southampton, Eye for Pharma London 2018, EUHIC Berlin 2018, Society and College of Radiographers; and a few overseas patient groups.  You can see some of those talks here

I’m also a contributor to Cure Magazine although only two articles published to date – read those here.

Credit: Ipsen Group (https://www.ipsen.com/patients/)

Other invitations include the making of an education video for Lex Pharma, helping to create and featured in Ipsen‘s patient support website Living with NETs, a photo shoot for a Macmillan Cancer internet campaign (click here), a photo and video shoot for Ipsen as a member of the European Pharmaceutical Industries and Associations (EFPIA) (click here). I’ve also been featured and/or mentioned in numerous other locations – read my blog site home page to read more.

Board Membership

Member of the following boards:

  1. 2019 WEGO Health Patient Advisory Boardclick here to see my WEGO profile.
  2. ONO Pharma UK Patient Advisory Board (now disbanded).
  3. Multi-Med Inc Strategic Advisory Boardclick here.
  4. Ipsen Patient Advisory Board for their Living with NETs website.

Patients Included

Everything I do is about patients and my site is accredited as “Patients Included”. That means everything must have patient input.

Disclaimer and Disclosures

All information provided on any of my social media accounts does not constitute professional medical advice. See my disclaimer and disclosures here.

My main sites are here (be careful not to unfollow or unlike!):

Blog – RonnyAllan.NETClick here

Twitter – @ronnyallan1 and @neuroendocrine_

Facebook – I have numerous accounts, here’s the main 3:

      • Neuroendocrine Cancer – my main site with around 10200 followers as of Dec 2020) – click here and ‘Like’ (BUT don’t unlike!)
      • Ronny Allan – additional output, more personal – click here and ‘Follow’ (BUT don’t unfollow!)

Newsletter – extending the reach into wider areas via a daily newsletter from twitter and other sources. click here to subscribe.

Instagram – click here to follow

Private Facebook Group (Educational focus) – I also have a private Facebook group which the fastest growing group in the NET community – click here to join (don’t forget to answer the questions).

Message me here: http://m.me/RonnyAllanBlog

Many of you who read this will already be on these sites so please ‘Follow’ or ‘Like’ as appropriate – be careful you don’t ‘Unfollow’ or ‘Unlike’. Please don’t send friend requests to my personal profile, I need that for my ordinary life!

There are so many other sources of routes into my blog and I’m grateful to the many patient advocate organisations, patient advocates, the healthcare community in general and many, many, more. If you’re reading this, thank you so much.

Please also note:
All information provided on any of my social media accounts does not constitute professional medical advice. See my disclaimer here: DISCLAIMER

Subscribe to my newsletter

Thanks for reading.

Ronny


I’m also active on Facebook. Like my page for even more news. Help me build up my new site here – click here and ‘Like’

Sign up for my newsletters –  Click Here 

Disclaimer

My Diagnosis and Treatment History

Follow me on twitter

Check out my online presentations

Check out my WEGO Health Awards


Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!

 

patients included

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