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Ronny Allan
Summary
May produced the best statistics in 2023, mainly due to your support for my blog post on Maria Menounos whose announcement headlined as “Pancreatic Cancer” caused a storm within the Neuroendocrine Cancer community.
Below, I’ll list the top performing blog posts in May and no secret which one is listed first.
Repeat after me: Maria Menounos has Neuroendocrine Cancer (ronnyallan.net)
Clinical Trial: Novel Somatostatin Receptor Subtype 2 Antagonist Labelled With Terbium-161 (161Tb-DOTA-LM3) (Beta plus) – (ronnyallan.net)
The Human Anatomy of Neuroendocrine Cancer – Ronny Allan – Living with Neuroendocrine Cancer
A spotlight on Chromogranin A (ronnyallan.net)
Neuroendocrine Cancer: Catch them early, not late! (ronnyallan.net)
Currently trending on RonnyAllan.NET – Ronny Allan – Living with Neuroendocrine Cancer
Diagnosed with Neuroendocrine Cancer? – 10 questions to ask your doctor (and where to find a NET Specialist Worldwide)
A frequently visited post, very helpful I’m told. It will one day be my most-read blog post. Click here or on the picture
“You must be doing OK, you’ve not had chemotherapy” – Ronny Allan – Living with Neuroendocrine Cancer
A first-time effort and was received OK given its monthly position. Click here or on the picture.
Rosacea – the NET Effect – Ronny Allan – Living with Neuroendocrine Cancer
A surprise addition. Click here or on the picture to read more.
Neuroendocrine Cancer – normally slow but always sneaky (ronnyallan.net)
An oldie but a goodie. Click here or on the picture to read more.
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
Top 10 Posts & Pages in the last 48 hours (auto updates) (Click the titles to read them)
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Who needs a gallbladder anyway?
We can survive without a gallbladder, but clearly it is a useful, functioning organ, and we are better off to keep it if we can.
Neuroendocrine Cancer Clinical Trial – Lutetium-177Lu (Satoreotide)
What is Satoreotide? It’s an agonist treatment. i.e. a ‘next generation’ radiologand for Peptide receptor radionuclide therapy (PRRT) or more specifically the radiopharmaceutical that binds
A review of September 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer
On my website RonnyAllan.NET, September was an interesting month because I had pushed out some blogs before I went on a planned overseas holiday from
Never mind the Bollocks – here’s the cancer
I don’t tend to share some very personal stuff, but this is on the boundary of that rule and there are some important messages to
First and only FDA-cleared, fully automated chromogranin A assay
There has been controversy about the utility of Chromogranin A for many years now. Specialists have been critical about its use but to be fair
Neuroendocrine Cancer: Question, Clarify, Confirm
One of the many observations I make in my private Neuroendocrine Cancer Facebook group is the misunderstandings caused by the use of non-standard terminology combined
Clinical Trial – Lutathera NETTER-2 Important Update
UPDATE – Sep 25th, 2023 – Novartis radioligand therapy Lutathera® demonstrated statistically significant and clinically meaningful progression-free survival in first line advanced gastroenteropancreatic neuroendocrine tumors
Lanreotide: Ipsen injection devices vs generic injection devices
Whenever I get a chance to talk to a pharma involved in somatostatin analogue injection devices, I tell them one very important thing …… “To
Cancer doesn’t take holidays (but I do)
Glen Etive Scotland in 2018 After diagnosis in July 2010, with the exception of a planned holiday to Turkey prior to my ‘big surgery’, holidays
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)
Hi Ronny:
I just want to ask if you know people that have severe cramps in hands, feet and legs. With terrible pain last at least for 20 minutes. I appreciate it any information that you can share with me. I have small intestine with metastasis in the longs for 5 years.
Best regards
Lolita Fernández
very common in the general population let alone in a cancer patient. It could be caused by a multitude of things. I know I get foot cramps when cycling but is that related to NET? I don’t think so. Most doctors will say to drink more water!
Cramps or spasms in the muscles often have no clear cause.
Possible causes of hand or foot spasms include:
1. Abnormal levels of electrolytes or minerals in the body
2. Brain disorders, such as Parkinson disease, multiple sclerosis, dystonia, and Huntington disease
3. Chronic kidney disease and dialysis
4. Damage to a single nerve or nerve group (mononeuropathy) or multiple nerves (polyneuropathy) that are connected to muscles
5. Dehydration (not having enough fluids in your body)
6. Hyperventilation, which is rapid or deep breathing that can occur with anxiety or panic
7. Muscle cramps, usually caused by overuse during sports or work activity
8. Pregnancy, more often during the third trimester
9. Thyroid disorders
10. Too little vitamin D
11. Use of certain medicine
Suggest check obvious ones, e.g. drink more water, check vitamin D and get a thyroid panel (particularly if taking lanreotide or octreotide). Also suggest reporting this symptom at your next specialist meeting.