I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea what the outcome would be. What I did know at the time, given the final staging and grading, in addition to the other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying.
Without intervention I may not be here now to tell you this tale and who knows what would be listed on my death certificate. It’s amazing to think something that would eventually kill me without intervention, didn’t have a much grander announcement than the one presented to me in 2010 (or had I been paying more attention, in 2008 or 2009). I will never know if a much grander announcement would have happened because following my chance diagnosis, I was ‘patched up’ and thankful to still be here today.
My “big surgery” took place on 9th November 2010. I say “big surgery” because I had two other surgeries following it, one of which could also be categorised as major surgery.
Truthfully speaking, I did not expect to be here 13 years later, or at least that was my thinking at the time and for some years after that. The fact that I am must be related to the early intervention and radical surgery administered over the period 2010-2012, and the constant surveillance since. As a metastatic small intestine NET, debulking surgery is thought to be prognostically advantageous for many.
Accessing a specialist team is important early on, preferably before surgery as there are certain vagaries with Neuroendocrine Tumours (NET) which should at least be considered.
I was admitted on 8th November 2010 for what my surgeon called “an octreotide soak”. That day was not incident free – you can read about that day here. Or click on the picture below.
I’ve written extensively about this but you can read it here:
Check out my detailed clinical history from diagnosis on 26th July 2010:
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Disclaimer: Educational and advocacy content only. Not a substitute for medical advice. Two hundred injections. It’s a milestone that carries weight — not because of
Before you read thisThis information is designed to help you understand how vitamins work in the body and how certain NET-related factors might affect them.
Disclaimer: This Spotlight is for general information only and should not be used as a substitute for personalised medical advice. Neuroendocrine neoplasms (NENs) are diverse,
Disclaimer:The information in this Spotlight is for general education and awareness. It does not replace personalised medical advice, diagnosis, or treatment. Thymic Neuroendocrine Neoplasms (NENs)
A monthly update not to miss……..Summary of April 2026 on RonnyAllan.NET I think the main story of April is similar to March which was a strong
DisclaimerThis Spotlight is for general education and reassurance only. It cannot replace personalised advice from your own medical team, who understand your individual history, imaging,
DisclaimerThe information in this Spotlight is for general education only. It cannot replace advice from your own medical team, who know your individual situation, test
I was delighted to read about the efforts of Dr Arthur Scott, a Member of the UK Parliament (MP). He is a great advocate for
DisclaimerThis information is for education and reassurance only.It is not a substitute for personalised medical advice, diagnosis, or treatment. Bone metastases in neuroendocrine tumours (NETs)
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