I’ve written many times about Nutrition and NETs – clearly it should say NENs (Neuroendocrine Neoplasms) as the issues also extend to Neuroendocrine Carcinomas. I was helped in the early days by my friend and ‘nutrition for NET’ mentor Tara Whyand, at the time, probably the top NET Nutrition Registered Dietitian in the world. Perhaps she still is.
Much of what Tara said and wrote, and what I emphasised, particularly in my blog and my patient group, was that much of this was not fully integrated into NEN patient care as part of a multi disciplinary approach. Many attempts have been made, a good example is the inclusion of dietary support in ENETS centres of excellence and the inclusion of dietitians on MDT/Tumour Board meetings. But it’s true to say there is no standard for such arrangements.
I was therefore delighted to see this ENETS position statement on nutritional support in Neuroendocrine Neoplasms (NENs) which may lead to more standardisation and increased support for these matters – the authors headed up the statement with the words “Controversies in NEN” which is probably still accurate in 2025 despite some of the science and statistics being around for double figure years.
List of specific questions on nutritional support in NEN used in the manuscript.
Question 1. What is the prevalence of malnutrition in NEN?
Question 2. What are the main reasons for under-nutrition?
Question 3. Are there specific micronutrient deficiencies in NEN?
Question 4. Which and when nutrition assessment is required in NEN?
Question 5. How do we personalize nutrition in NEN patients?
Question 6. How do we address obesity in NEN?
Question 7. How to promote research in Nutrition in NEN?
Interested? See link below:
Grozinsky-Glasberg S, Hofland J, Alband S, et al. Controversies in NEN: An ENETS Position Statement on nutritional support in neuroendocrine neoplasms. J Neuroendocrinol. 2025;e70062. doi:10.1111/jne.70062
Click here to read.
Author’s Summary
I think the heading of this section remains accurate. NENs are known to be a highly heterogenous collection of cancers and this extends to issues such as nutrition. You may be interested in also checking out all my previous nutrition articles taken from esteemed sources and written by myself as a patient who has experienced many of these issues (a lot of the work was quoted from Tara Whyand mentioned above). She now works as a private dietitian and I recommend her if you have access.
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I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
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