Excellent news for those who don’t have Gastroenteropancreatic NETs (GEP-NETs). A trial of PRRT is being set-up for the less common types of NET incuding those with an unknown primary. Using the DOTATOC radionuclide rather then the Lutathera model of using DOTATATE, this trial will cater for Pulmonary, Pheochromoctyoma, Paraganlioma, Unknown Primary and Thymic Neuroendocrine […]
Rani Therapeutics, a leader in oral biologics, has announced positive results from the Phase I clinical study of its orally-delivered version of octreotide, Octreotide-RP, a drug used in the treatment of acromegaly and neuroendocrine tumors. The Phase I study successfully achieved both its primary and secondary endpoints, demonstrating the safety and tolerability of Octreotide-RP, the […]
As featured by Neuroendocrine Cancer UK (formerly NET Patient Foundation) It’s well known that Neuroendocrine Cancer can often be a difficult to diagnose condition. However, what is less well known is the impact it has on those who are diagnosed. I’m one of the lucky ones, even though I still ended up with distant metastases. […]
The Trouble with the NET © is a series of articles from Ronny Allan about the perils and dangers which lurk on the internet and can trap the unwary into believing that something which sounds good must be true – after all, it’s on the internet so it must be true? WRONG. However, we must […]
Neuroendocrine Neoplasms (NENs) present complex challenges to diagnosis and treatment. Even in metastatic cases spreading to the liver there are some important differences compared to the more common types of gastrointestinal tumours and pancreatic adenocarcinomas, e.g. their sometimes indolent nature and their ability to oversecrete hormones causing distinct clinical syndromes. Also, the tumours are known […]
EDIT: Excellent news. 💙 Charlie Robin Meyricke Dalglish 💙 – born 4 Feb 2020 This story is about my friend Kirsty. She has metastatic Pheochromocytoma, a type of Neuroendocrine Tumour (NET) of the adrenal glands – (read more here) She has an amazing blog which is not just for Pheochromocytomas or just for Neuroendocrine Cancer […]
2019 has been quite a year and my blog views are the highest they have ever been. They could have been even higher had I written more articles instead of resting on my laurels after reaching ONE MILLON total views in June of this year. Will try harder in 2020! Things are so hectic I […]
It’s well known that Neuroendocrine Cancer is difficult to detect and as a consequence, many people are not diagnosed until late stages. The difficulty in detection is not just focussed on the complexity of the disease but also the lack of understanding within the medical community who don’t always see sufficient evidence to refer the […]
